The Child with a Life Threatening Condition and End of Life Care (PowerPoint)

Question 1

over how old will know they are dying

Answer 1

5

Question 2

t/f we need to be honest

Answer 2

t

Question 3

AND or DNR

Answer 3

AND

Question 4

anticipatory waiting phemonemnom

Answer 4

what’s next

Question 5

what should happen with the siblings visit

Answer 5

talk with the sibling and answer any questions asked in an honest manner at a level the child can understand

Question 6

6 things parents need from RN

Answer 6

honest and complete info
ready access to staff
communication and care coordiantion
emotional expression and support from staff
preservation of the integrity of the parent child relationship
faith
**happy rabbits chase every playful frog

Question 7

what is palliative care

Answer 7

multidisplinacy care approach for children with life threatening disorders and their families
- relieve suffering of all types
- enhance quality of life for patients and families
- facilitate informed descsion making
- improve care coordination

Question 8

what is hospoice

Answer 8

palliative care provided by licensed agencies, most often in home, near the end of life
focus on supporting family and ensuring remaining time as comfortable as possible

Question 9

paliative or hospice
paid by insurance or self

Answer 9

palliative

Question 10

paliative or hospice
any stage of disease

Answer 10

palliative

Question 11

paliative or hospice
paid by medicare, medicaid or insurance

Answer 11

hospice

Question 12

paliative or hospice
same time as curative treatment

Answer 12

palliative

Question 13

paliative or hospice
comfort care

Answer 13

both

Question 14

paliative or hospice
typically in hospital

Answer 14

palliative

Question 15

paliative or hospice
reduce stress

Answer 15

both

Question 16

paliative or hospice
offer complex symptom relief related to serious illness

Answer 16

both

Question 17

paliative or hospice
prognosis less than 6 months

Answer 17

hospice

Question 18

paliative or hospice
excludes curative treatment

Answer 18

hospice

Question 19

paliative or hospice
physical and psychosocial relief

Answer 19

both

Question 20

paliative or hospice
wherever patient calls home

Answer 20

hospice

Question 21

t/f parents will remember this for the rest of their lives

Answer 21

t

Question 22

nurses response to death

Answer 22

acknowledge their grief
must support each other
need to share fried
- own family, Childs family, other nurses
must accept difficulty or experince

Question 23

coping behavior is influence by

Answer 23

maturation
cognitive development
understanding
temperament
previous coping
support systems