HIS LESSON 11 PART 2 Flashcards
state the traits of CDR Relevant to data reuse?
- Sample Size
- Data Generations from Source 3. Level of Integration
- Longitudinal Observations
- Personally Identified
- Research Accessibility
- Data Quality
- Linked Biosamples
- Biomolecular Data
extent to which data are accessible to researchers, within or outside the home institution
research accessibility
number of times data or access methods were modified
Data Generations from Source
number of patients represented?
sample size
extent of structuring that organizes data for query.
level of integration
contains observations over multiple times per patient.
longitudinal observations
what are the types of data generations from sources?
first generation data - hospitals
2nd generation data - doh
3rd generation - federation
capable of delivering direct patient identifiers to research projects
personally identified
extent to which data are accessible to researchers, within or outside the home institution
research accessibility
biosamples linked to phenotypic information
linked biosamples
accurate, complete, and consistent
data quality
biomolecular/omics data linked to phenotypic information.
biomolecular data
it means it comes from the primary source.
first generation data
data that comes from the first-generation data.
second generation data
TYPES OF CLINICAL DATA REPOSITORY AS IT IS USED IN THE MEDICAL WORLD
- Study
- Electronic Health Record (EHR)
- Registry
- Warehouse
- Collections
- Federation