ethics Flashcards
withholding vs withdrawing
no ethical difference
when can minors have a say in their treatment
if emancipated or if “mature” (~14)
beneficial interventions
temporary revisions to standing DNR orders (e.g. in case of surgery)
PCP’s role with insurance companies
advocate for patient for crucial services
e.g. advocate for referrals, medications, etc even if negatively impacts PCP
dead donor rule
removal of paired/vital organs and a non paired organ cannot precede or cause death
savior sibling rules for SCT
- no adult or donor options are available
- strong positive relationship between siblings
- both donor and recipient benefit
- risk to donor is minimal
- child must assent if old enough
savior sibling rules for solid organs
- donor and recipient have to benefit
- surgical risk to donor must be minimal
- absence of coercion verified by 3rd party
assent of child
- input solicited
- age-appropriate understanding of situation
- tell child if treatment will happen regardless of child’s assent
- respect if culture says not to involve child
inclusion of test on NBS
- significant deleterious effect
- effective treatment if diagnosed early
- screen that is acceptable to the population
GH is FDA approved for
- Turner syndrome
- chronic renal insufficiency
- Prader Willi
- idiopathic short stature
HIV positive child
- support for teens
- no boxing, wrestling
- NOT mandatory to disclose to school
- identify health proxy for teens
IPV exposure for chidlren
- at risk for physical injury
- increased chance of aggression
- separation anxiety
- at risk for school failure and risky sexual behavior
reporting IPV
mandatory reporting bc child may be exposued
foster care
- health screen within 72 hrs
- comprehensive assessment within 30 days
- child represented in court by law guardian (trained volunteer or attorney)
children in research
- healthy: cannot participate if more than minimal risk
- w/disorder: can participate if there is potential benefit (if no direct benefit, only if minor increase over minimal risk)