autism Flashcards

1
Q

Autism as a condition was first described in the early 1940s by Leo Kanner in the US, and Hans Asperger in Austria.

They both described children who struggled to interact with others, needed to follow rules and routines, and showed repetitive behaviour.

A
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2
Q

what percentage of autistic people also have learning difficulties

A

30%

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3
Q

do more men or women have autism and what can affect this ratio

A

More men than women have a diagnosis of autism, although the ratio has decreased over time. It is now thought that a large part of this discrepancy is due to women being often misdiagnosed or undiagnosed

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4
Q

what is the percentage of autism diagnosis in the population

A

Rates of autism diagnosis have increased and are now estimated at 1.5% of the population

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5
Q

In summary, autistic people:

view the world differently and often like it to make sense from their perspective
exhibit unique talents and gifts
see things that other people don’t
have different ways of managing things
can struggle with basic day-to-day activities
are sometimes diagnosed in early years, others not until adulthood

A
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6
Q

what are the 2 diagnostic criteria for autism

A
  • social and communication
  • sensory and behaviour
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7
Q

explain what the 2 diagnostic criteria of autism are

A

social and communication = persistent difficultieswith social communication and social interaction (e.g unable to read ppls emotions)

sensory and behaviour = restricted and repeated patterns of behaviour, activites or interest (e.g sensory needs)

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8
Q

sensory differences involve all the senses, including interception (the sense of the internal state of the body), proprioception (the sense of the position of the body), balance and pain
sensory differences can include hypersensitivity (being more sensitive than usual), hyposensitivity (being less sensitive than usual), sensations being extremely pleasant or extremely unpleasant
sensory sensitivities are not universal, for example, one autistic person may be hypersensitive to a stimulus that has no effect on another
hypersensitivity can lead to sensory overload, which is extremely distressing and can impact on ability to function
sensory differences can lead to difficulty in processing information as there is too much or too little coming in
autistic people tend to have great difficulty in filtering out and making sense of sensory information
all sensory sensitivities can become far worse under stress

A

In summary, some autistic people:

may prefer to communicate in a variety of ways, including but not limited to spoken speech, writing, apps or pictures
can find telephone communication difficult
are non-verbal, meaning they do not speak. This can be their normal state of being or a temporary result of stress
will speak clearly and directly
may need help from care workers or family members to communicate
might carry a hospital passport to help describe individual communication needs

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9
Q

In summary:

autistic body language is often different to non-autistic body language. Do not assume you can read theirs or they yours
distress or sensory overload can lead to a fight/flight/freeze response. If this happens, step back and minimise interaction until it passes
many autistic people stim as a self-calming mechanism. This can involve hand flapping, fidgeting, rocking, pacing and many other forms. Do not try and stop this unless it is leading to harm to others or themselves

A

In summary, some autistic people:

can find changes to routines very distressing
may have trouble initiating tasks and need prompting

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10
Q

How much shorter is the life expectancy of autistic people with a learning disability compared with non-autistic people

A

Autistic people with a learning disability die on average 30 years younger than non-autistic people.

Also, autistic people without a learning disability die on average 12 years younger.

Partially, this is due to co-occurring conditions such as epilepsy. Unfortunately, barriers in accessing healthcare influence this even more.

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11
Q

what percentage of autistic people have mental illness

A

That’s not quite correct.

Nearly 80% autistic people have a mental illness.

Unfortunately, it is often very difficult for autistic people to access mental health services and get the adjustments they need.o9

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12
Q

Sensory issues and rigidity can cause great amounts of stress if adaptations are not in place, and they are often isolated or treated badly by the people around them.

A
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13
Q

Autism is a neurological condition that affects people on a spectrum of severity. remember there is no high or low on the spectrum, just varied symptoms

A
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14
Q

what are the 3 legal obligations that define how to make healthcare environments as accessible as possible for autism

A
  • equality act 2010 (autism is under disability)
  • human rights act 1988
  • mental capacity act 2005 (right to make decisions for themselves over 16)
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15
Q

If an autistic person behaves in a way that your service would normally find unacceptable, can they be banned from the service under zero tolerance rules? and why

A

no
There needs to be a balance between the human rights of those providing the service and the Equality Act rights of people with autism.

The service should first consider whether reasonable adjustments could enable the autistic person to access the service in a way which is compatible with the rights of staff and others.

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16
Q

All adults (and children) are entitled to be fully involved in decisions about them and to be provided with accessible forms of communication.

Parents will be the responsible decision-makers in the case of a child, to the same extent that they would be for a non-disabled child.

For adults, all decisions should be made by the adult themselves or in their best interests.

A

a person with autism’s next-of-kin will be responsible for decisions about them if they are non-verbal (don’t speak).

17
Q

Is an autistic person entitled to reasonable adjustments to make a service accessible, even if they don’t seem disabled? if so, which law /act makes this viable

A
  • equality act 2010
  • requires services to make reasonable adjustments witch autism clearly stated as a disability
18
Q

Do autistic adults have the right to make their own decisions?

A

yes unless demonstrated otherwise

19
Q

It is true that if an adult who has mental capacity declines treatment, you must not treat them.

However, first you should consider whether reasonable adjustments like providing written/picture information, thinking time and/or explaining what you are going to do, would make the healthcare accessible to them and support their decision making.

A
20
Q

Can a 17 year old autistic person consent to an MRI?

A

yes, from the ages of 16 they are assumed to have the mental capacity to consent

21
Q

what 2 things can an austic person do as they experience sensory opverload

A

When things get to a crisis point, there are 2 things that can happen. Autistic people will either have a “meltdown” and try as best as they can to get away from the cause, no matter what is between them and safety, or they will shut down by going completely passive.

Neither are controllable, voluntary or conscious.

22
Q

what are hospital passports

A

Hospital passports are documents that briefly describe a person’s health and communication needs, contact details for their friends or family, and descriptions of things that might cause them distress.

A hospital passport should be shown to any healthcare professionals the autistic person comes in contact with, keep with their notes at their bed if they are admitted.

23
Q

what is NHS spine

A

online portal visible to organisations providing care as soon as the patient is registered or referred, allowing the organisation to be immediately aware and prepare in advance to provide adjustments.

24
Q

Try the following when working with autistic people:

Provide a quiet waiting room instead of a busy environment.
Ask the person if they would like someone with them.
Create an action plan summarising exactly what treatment has been provided, when it was carried out, medications and timings for taking them. This will aid continuity when the autistic person needs to see a new doctor.
Keep rooms free of distractions with minimal furniture and decor.
Offer to reschedule if waiting is causing them too much distress.
Provide the same environment where possible because autistic people prefer the same routine, times and health workers.
Help the individual acclimatise to a new environment by showing them around, discussing the equipment and meeting the team.

A
25
Q

define sensory overload

A

Sensory overload is extreme stress caused by hypersensitivity to stimuli in the environment.

26
Q

Autistic people may be non-verbal or might use assistive communication tools. Either way, all will struggle to some extent with communication

A

You need to be aware of how you act and how you approach people. As a result, you may need to be more direct than usual. At the same time, avoid falling into the trap of assuming people cannot understand you.

27
Q

A lot of terms are available when talking about autism. Some are used more by autistic people and others more by professionals. Some might find certain terms offensive that others use everyday to refer to themselves.

It is vital that you identify how that person prefers to be addressed and use the correct term for them.

A
28
Q

what are the 9 ways you can refer to someone with autism (different ways to label them as theyd like)

A
  • ….. has autism
  • ….. is autistic
  • autism spectrum condition
  • autism spectrum disorder
  • aspergers syndrome
  • neurodivergent and neurotypical
  • pathological demand avoidance (inability to cope with being told what to do.)
  • high / low functioning
  • aspie and autie
29
Q

what does ASC, ASD, NT,ND PDA stand for

A

aspergers spectrum condition
aspergers spectrum disorder
neurotypical
neurodivergent
pathological demand avoidance

30
Q

what are 6 things to consider when interacting with autistic ppl

A
  • explain clearly to them
  • their logic might not make sense to us
  • give them time and be patient
  • respect individual needs
  • listen to them
  • be mindful of what matters to them
31
Q

Some autistic people speak, some don’t. Some may talk only some of the time, and some might talk, but have some trouble understanding or being understood.

A
32
Q

what are 7 methods autisic people can use to communicate

A
  • speaking
  • apps and text message
  • writing and text
  • images and symbols
  • sign language
  • objects
  • easy read (writing documents with simple words and pictures)
33
Q

what does PECS stand for and what is it

A

picture exchange communication system
- uses images to communicate