Long Case Issues to Consider in every case

Question 1

General Long Case Issues

Answer 1

1) Keeping them well/General Health surveillance and enhancement
- Immunisations
- Dental review
- Vision/hearing
- Bowels
- Sleep
- Mental health

2) Medication vigilance - adherence, side effects, doses
- Medication reconciliation/rationalisation
- Monitoring and managing side effects
- Webster pack
- Liase with pharmacist

3) Disease specific health surveillance
- T21: FBE, TFT, Opthal, ECHO/ECG, coeliac
- Bone health

4) Nutrition + Feeds Optimisation /
Growth

5) Maximising child’s developmental and functional potential

6) Emergency Planning
- Seizures
- Steroids
- Diabetes sick day / hypoglycaemia
- Asthma
- CPR
- Medic alert
- Written plans
- Carers were to become unwell, who would look after child?

7) Transition
- Adult medical services
- Out of schooling

8) Financial Support
9) Parental / sibling mental health/support
10) Discussions around plans if child were to significantly deteriorate
11) Setting/re-framing expectations with family
12) Genetic counselling/family planning