Advanced Care / End of Life

Question 1

End of life/advanced care plan

Answer 1

DON’T GET SUCKED INTO GIVING FIRM VIEW ABOUT LIMITING RESUS AFTER ONLY 1 HOUR WITH PATIENT
Quality of life is subjective
Ask child/parent about understanding of diagnosis
Think about timing of this - aim to do when in period of medical stability vs. whilst in hospital
Discussion that happens over a number of sessions
Done with clinician that has rapport
Consider religious beliefs
Timing of palliative care involvement
Talk about what CPR is
Include SW/other trusted team members in discussion /Who would the family feel most comfortable having this discussion with
Talk to the child about their wishes
Document clearly