22.7 (19.7) QoL & Pt reported outcome measures

Question 1

Name TWO general approaches to defining QoL

Answer 1

◆ Overall QoL
- broad concept
- “how is your life, everything taken into consideration”

◆ Health related QoL
- distinct health-oriented concept focusing on the subjective experience of health including symptoms and functioning

Question 2

Name THREE QoL measurement tools

Answer 2

◆ Linear analogue self-assessment scales (LASAs)
◆ Sickness Impact Profile
◆ Nottingham Health Profile
◆ Short Form 36 (SF-36)
◆ Barthel index
◆ General Health questionnaire
◆ Profile of Mood States

Question 3

What is a patient-reported outcome (PRO)?

Answer 3

◆ a measurement that comes directly from the pt without amendment/interpretation of the pt’s response by a clinician or anyone else

Question 4

Name THREE specific palliative QoL measures

Answer 4

◆ QoL before death
◆ controlling syms
◆ support for family
◆ “Meaning” including purpose, spirituality, grief
◆ Family experience at EoL