Family Centered Care

Question 1

Elements of family centered care

Answer 1

Family as the center
Collaboration
Sharing information
Respect for cultural diversity
Broad array of support
Flexible systems of care
Appreciating families

Question 2

Practice examples of of “family being the center”

Answer 2

Providing a comfortable stay at hospital
(Promotes sibling visitation)
Providing a place to stay away from the hospital for families who spend long hours at the hospital or travel long distances
Encourage parents to participate in care provisions
Encourage them to be with their child during procedures and treatments

Question 3

Example of a place for family w/ long hours at the hospital or travel a long ways

Answer 3

Ronald McDonald house

Question 4

What info can you find at the family resource center

Answer 4

About your disability
Medical conditions
Familt life
Parenting
Peer support
Recreation and leisure
Scholarship info
Wellness and health info

Question 5

Collaboration

Answer 5

Seeing a partnership role
Active listening
Negotiation

Question 6

What is collaboration characteristics by

Answer 6

Communication (report , respect, avoid medical jargon, ask open ended questions , summarize / reflects , demonstrates empathy, nonjudgemental attitude

Question 7

How is participation achieved by?

Answer 7

Actively encouraging patients and families to participate in providing care and making decisions

Question 8

How is collaboration accomplished by

Answer 8

Partnering with the family in the delivery of care
Family centered care is GROUNDED in collaboration

Question 9

Collaboration practice examples *come back

Answer 9

Understand the pt/family perspective

“Why is her LASIX pink today , it is usually yellow?”
Always double check “you know what let me make sure what im giving is correct”
Ask the question “how does your child look today?”
Because parent is always with them you aren’t
Inclined parents in the decision making process
Evaluate care and health care professionals involved in their care
Family advisory councils ( family on the board giving recommendation)

Question 10

How can you include parent in the decision making process in collaboration?

Answer 10

Multidisciplinary meetings or care conferences
Bed side shift report
Interdisciplinary rounds

Question 11

Multi disciplinary or Care conferences

Answer 11

Conference - anyone involved in child’s care
(All of the physicians , OT, PT, speech,dietitian, charge and primary nurse

Question 12

What units typically have care conferences

Answer 12

Pediatrics or palliative

Question 13

Sharing information #3

Answer 13

Sharing complete and unbiased info to the family (including siblings at a developmental appropiate level)

Question 14

Caregivers who experience family-centered care report

Answer 14

Feeling empowerment

Question 15

Empowerment

Answer 15

When caregivers acquire a sense of control over families lives
Acknowledge positive changes from fostering their strengths abilities and actions

Question 16

Practice examples for sharing information

Answer 16

Diagnosis
Equipment
Lab results
Medications
Routines (meal times and activities)
Vital info like pain, medications and illness
“Do you understand why your child is here?

Question 17

When is it never ok to give results

Answer 17

When giving a diagnosis

Question 18

4Respect for cultural diversity

Answer 18

Understanding cultural and religious beliefs (respect and sensitivity)
Understanding coping differences

Question 19

Texas nurses association

Answer 19

Provide without discrimination regardless of age, disability, economic status, gender , national orgin, race, religion, health problems or sexual orientation

Question 20

Practice examples of cultural diversity

Answer 20

Providing translators / interpreters (written info in primary language)actives and religious beliefs
Learning about a family’s cultural healing practices and religious beliefs
Explaining terminology

Question 21

5 broad array of supports

Answer 21

Families need an adequate support system
Families need appropriate resources

Question 22

Practice examples of broad array of supports

Answer 22

Parent to parent or family to family support
Mentors/navigators for chronic conditions
Group support ( for parents or adolescents)
Anger, parent, sibling
Or diagnosed based camps

Question 23

Navigators

Answer 23

The idea behind a navigator is assigned to discharge and they are going to watch them when they go home and make sure they have what they need so they do not have to be rehospitalized ( diabetes) . Typically social workers but usually have an RN that are over them

Question 24

6 flexible systems of care

Answer 24

We want to give them choices and maintain routines that were established by the family
Flexibility - remember need for respite
If child needs someone to stay with them what are some other options?? Volunteers, someone else in town

Question 25

Practice examples collaboration eliciting vital information about their child’s response to

Answer 25

Pain
Medications
Illness

Why? So we can adjust the dose

Question 26

Practice examples for flexibility

Answer 26

Flexible scheduling of clinic visits after 5pm and on Saturday
Satellite clinics at schools that have a NP or PA that can see the child right away

Question 27

7 appreciating families

Answer 27

Facilitate normalization
School work
Hobbies and recreation
Independence

Question 28

Practice examples of appreciating families

Answer 28

Introducing self
Never assume who the parents are
Ask parents their names and how they want to be addressed
Avoid nice name
Be sensitive to terminology

Question 29

Family defined

Answer 29

Whatever the client considers

Question 30

Family systems theory

Answer 30

Family continually interacts with another
Emphasis is on interaction between members

Question 31

what are the major influences on adaptability?

Answer 31

Are the imaginary lines that exist between the family and the environment or the boundaries

Question 32

When you hear family systems think two thing

Answer 32

First - interaction between family members
And do those family members have boundaries

Question 33

Family stress theory

Answer 33

Family encounters stressors, both predictable and unpredictable

Multiple stressors in a short period of time can overwhelm their ability to cope which may lead to crisis

Some go into crisis some do not.

Question 34

Nuclear family

Answer 34

Traditional
Consist of married couple and thier biologic children

Question 35

Blended or reconstituted

Answer 35

Includes at least one step parent, step sibling or half sibling

Question 36

Extended family or house hold

Answer 36

Includes at least one parent, one or more children and one or more members other than parent or sibling related or not

Question 37

Single parent

Answer 37

A women or man and their child or children biologic or adopted

Question 38

Lesbian and gay

Answer 38

Common
And raising a child from previous heterosexual relationship or artificial or adoption

Question 39

Polygamous

Answer 39

Multiple husbands or wifes

Question 40

Communal

Answer 40

Share common ownership of property
Share roles and responsibilities

Question 41

Authoritarian

Answer 41

Dictorial
Unquestioned rules and expectations
Do it because i said so

Question 42

What can authoritarian cause?

Answer 42

Can result conforming behavior sensitive, shy self conscious
Courteous honest and dependable