Family Centered Care Flashcards
Elements of family centered care
Family as the center
Collaboration
Sharing information
Respect for cultural diversity
Broad array of support
Flexible systems of care
Appreciating families
Practice examples of of “family being the center”
Providing a comfortable stay at hospital
(Promotes sibling visitation)
Providing a place to stay away from the hospital for families who spend long hours at the hospital or travel long distances
Encourage parents to participate in care provisions
Encourage them to be with their child during procedures and treatments
Example of a place for family w/ long hours at the hospital or travel a long ways
Ronald McDonald house
What info can you find at the family resource center
About your disability
Medical conditions
Familt life
Parenting
Peer support
Recreation and leisure
Scholarship info
Wellness and health info
Collaboration
Seeing a partnership role
Active listening
Negotiation
What is collaboration characteristics by
Communication (report , respect, avoid medical jargon, ask open ended questions , summarize / reflects , demonstrates empathy, nonjudgemental attitude
How is participation achieved by?
Actively encouraging patients and families to participate in providing care and making decisions
How is collaboration accomplished by
Partnering with the family in the delivery of care
Family centered care is GROUNDED in collaboration
Collaboration practice examples *come back
Understand the pt/family perspective
“Why is her LASIX pink today , it is usually yellow?”
Always double check “you know what let me make sure what im giving is correct”
Ask the question “how does your child look today?”
Because parent is always with them you aren’t
Inclined parents in the decision making process
Evaluate care and health care professionals involved in their care
Family advisory councils ( family on the board giving recommendation)
How can you include parent in the decision making process in collaboration?
Multidisciplinary meetings or care conferences
Bed side shift report
Interdisciplinary rounds
Multi disciplinary or Care conferences
Conference - anyone involved in child’s care
(All of the physicians , OT, PT, speech,dietitian, charge and primary nurse
What units typically have care conferences
Pediatrics or palliative
Sharing information #3
Sharing complete and unbiased info to the family (including siblings at a developmental appropiate level)
Caregivers who experience family-centered care report
Feeling empowerment
Empowerment
When caregivers acquire a sense of control over families lives
Acknowledge positive changes from fostering their strengths abilities and actions
Practice examples for sharing information
Diagnosis
Equipment
Lab results
Medications
Routines (meal times and activities)
Vital info like pain, medications and illness
“Do you understand why your child is here?
When is it never ok to give results
When giving a diagnosis
4Respect for cultural diversity
Understanding cultural and religious beliefs (respect and sensitivity)
Understanding coping differences
Texas nurses association
Provide without discrimination regardless of age, disability, economic status, gender , national orgin, race, religion, health problems or sexual orientation
Practice examples of cultural diversity
Providing translators / interpreters (written info in primary language)actives and religious beliefs
Learning about a family’s cultural healing practices and religious beliefs
Explaining terminology
5 broad array of supports
Families need an adequate support system
Families need appropriate resources
Practice examples of broad array of supports
Parent to parent or family to family support
Mentors/navigators for chronic conditions
Group support ( for parents or adolescents)
Anger, parent, sibling
Or diagnosed based camps
Navigators
The idea behind a navigator is assigned to discharge and they are going to watch them when they go home and make sure they have what they need so they do not have to be rehospitalized ( diabetes) . Typically social workers but usually have an RN that are over them
6 flexible systems of care
We want to give them choices and maintain routines that were established by the family
Flexibility - remember need for respite
If child needs someone to stay with them what are some other options?? Volunteers, someone else in town
Practice examples collaboration eliciting vital information about their child’s response to
Pain
Medications
Illness
Why? So we can adjust the dose
Practice examples for flexibility
Flexible scheduling of clinic visits after 5pm and on Saturday
Satellite clinics at schools that have a NP or PA that can see the child right away
7 appreciating families
Facilitate normalization
School work
Hobbies and recreation
Independence
Practice examples of appreciating families
Introducing self
Never assume who the parents are
Ask parents their names and how they want to be addressed
Avoid nice name
Be sensitive to terminology
Family defined
Whatever the client considers
Family systems theory
Family continually interacts with another
Emphasis is on interaction between members
what are the major influences on adaptability?
Are the imaginary lines that exist between the family and the environment or the boundaries
When you hear family systems think two thing
First - interaction between family members
And do those family members have boundaries
Family stress theory
Family encounters stressors, both predictable and unpredictable
Multiple stressors in a short period of time can overwhelm their ability to cope which may lead to crisis
Some go into crisis some do not.
Nuclear family
Traditional
Consist of married couple and thier biologic children
Blended or reconstituted
Includes at least one step parent, step sibling or half sibling
Extended family or house hold
Includes at least one parent, one or more children and one or more members other than parent or sibling related or not
Single parent
A women or man and their child or children biologic or adopted
Lesbian and gay
Common
And raising a child from previous heterosexual relationship or artificial or adoption
Polygamous
Multiple husbands or wifes
Communal
Share common ownership of property
Share roles and responsibilities
Authoritarian
Dictorial
Unquestioned rules and expectations
Do it because i said so
What can authoritarian cause?
Can result conforming behavior sensitive, shy self conscious
Courteous honest and dependable
