UNIT 1 FAMILY CENTERED CARE Flashcards
What is family-centered care?
A partnership that develops between families and health care professionals
Focuses on the needs of all family members, not just the child’s needs
Why family-centered care?
When parents stayed with their children
1. They were quieter, happier, and recovered sooner
2. They had decreased anxiety during procedures
3. Needed less pain medication following surgery
4. Coped better during hospitalization
What are the 7 elements of family-centered care?
- Family as the center
- Collaboration
- Sharing information
- Respect for cultural diversity
- Broad array of supports
- Flexible systems of care
- Appreciating families
What are some benefits of having family as the center of care?
- Families have important knowledge about their children
- their child’s health condition
- How their child responds to various actions/events/medications
Who knows the child best?
The family– they know their child better than anyone– they are the “experts”
True or false: Illness or injury affects all members of the family system even the siblings?
True– family system theory
What are some examples of how we can uphold the element of family as the center?
- Providing comfortable places for the family to stay at the hospital
- Providing a place to stay away from the hospital for families who spend long hours at the hospital or travel long distances
- Ronald McDonald house
- Encourage parents to participate in care provision
- Encourage them to be with their child during procedures & treatments
What is collaboration in family-centered care?
Seeking a “partnership role
How is collaboration characterized in family-centered care?
1.Communication
- Establishes rapport
- Respectful
- Avoids medical jargon/terminology
- Asks- open-ended questions
- Summarizes/reflects
- demonstrates empathy
- non-judgmental attitude
2. Active listening- Talking is good but we need to make sure we take time to actually hear what our patients are telling us
3. Negotiation- adapting our schedule to meet their needs but to also accomplish our tasks
What are some examples of collaboration in family centered care?
- When communicating, remember to
- understand the patient/family perspective. “why is her lasix pink today, it is usually yellow…. anytime a patient questions double check yourself regardless if you are 100% sure
- Ask the question “how does your child look today”
- we can only assess what we see on the days that we are hear… that is why its helpful to ask parents since they are with the patient almost always
- Include parents in decision making process
- multidisciplinary meetings or care conferences
- bedside shift report/intradisciplinary rounds
- Evaluating care and health care professionals involved in their care
- Family advisory councils.
What is sharing information in family-centered care?
- Sharing complete and unbiased information to the family (including siblings at a developmentally appropriate level)
What is Empowerment in family-centered care?
- The interaction of professionals with families in a way that the family maintains or acquires a sense of control of their family lives
- Once we assess the parents extent of knowledge of skills we can start to Acknowledge positive changes from fostering their strengths, abilities and actions.
What are some examples of sharing information?
Sharing information about
1. Diagnosis- Doctors need to share initial diagnostic information but we can educate further when topics are not understood
- Equipment- for example explaining what a pulse ox is for and what it monitors and what too look for and expect when the machines noise
- Lab Results- as long as it not diagnostic we can share lab values and let them know that the doctor should reach back out with a plan if needed
- Medication- remember to keep things simple when teaching children
- routines (e.g., mealtimes, activities)
- snack time is important
- Eliciting vital information about their child’s response to
- pain
- medication- ask about past medications sometimes we have to adjust medication based on information given
- illness
What is respect for cultural diversity in family-centerd care?
Understanding cultural and religious beliefs- respect and sensitivity and understanding coping differences
What does Texas nurse association rule 217.11 state?
Standards specific to registered nurse:
“provide, without discrimination, nursing services regardless of age, disability, economic status, gender, national origin, race, religion, health problems, or sexual orientation of the client served”
What are some examples of respecting cultural diversity in family-centered care?
- Providing translators/interpreters
- written information should e in the families primary language
- Learning about a family’s cultural healing practices & religious beliefs
- Explaining terminology
What is broad array of supports for family centered care?
Families need an adequate support system and appropriate resources
What are some examples of utilizing broad array of supports in family-centered care?
- Parent-to-parent or family-to-family support
- parents have baby with congenital defect paired with a family that has went through similar events with a child with the same congenital defect
- Mentors/navigators for chronic conditions
- assigned at discharge… watch patients as they discharge to ensure that they have everything they need… meds, rides, resources to help manage health conditions… asthma and diabetic navigators are super common in the PEDI world.
- Group support (for parents or child/adolescent)
- anger management groups
- parent support groups
- sibling support groups
- asthma camps, diabetic camps and other diagnosis-based camps (may have a scholarship available)
What is flexible systems of care in family-centered care?
- Choice- maintain routines established by the family
- Flexibility- remember need for respite
What are some examples of using flexible systems of care in family-centered care?
- flexible scheduling of clinic visits (after 5PM and on Saturdays)
- Alternatives such as satellite clinics at school that have a NP or PA that can see the child right away
What is appreciating families in family-centered care?
- Facilitate “normalization”
- This refers to the efforts family members make to create a normal family life
- schoolwork
- hobbies & recreational activities
- independence
What are some examples of appreciating families in family-centered care?
- Introducing ourselves
- Never “assume” who the parents are
- Asking parents their names and how they wish to be addressed
- avoid terms such as honey, sweetie, mom
- include siblings
- Being sensitive to terminology
Family is defined as
Whatever the patient considers it too be
What is family systems theory?
The family is a system that continually interacts with its members and the environment
Emphasis is on interaction between members
Problems do not lie in any one member but in the type of interactions used by the family
