Last Days Flashcards

1
Q

Review of declining patient

A
  • Diagnosis
  • Physical exam/history
  • PPS

Symptoms:

  • PO intake, appetite
  • Functional status
  • BMs
  • Pain
  • Dyspnea
  • Nausea
  • Fatigue
  • Cognitive status
  • Review investigations to ensure any possible reversible causes of decline have been considered
  • Current meds
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2
Q

Resources required for a home death

A
  • 24/7 support
  • Appropriately equipped care team (family, +/- professional supports) for personal care, symptom assessment, treatment
  • Pharmacy for medications with well-planned refills ahead of when death is expected
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3
Q

Considerations for transfer to hospital

A
  • PCUs may not be available in smaller hospitals
  • Consider availability of private rooms in local hospital
  • Availability of physicians, nurses, other professionals with palliative care
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4
Q

Key items for discussion as EOL approaches

A
  1. Info and communication (particularly while patient still able to communicate)
    - Questions about illnesses and change in status from patient and family
    - Review advance directive, preferred location of death
    - Organ and tissue donation
    - Substitute decision making
  2. Assessment of Family Needs and Resources
    - Concerns or fears about dying
    - Resources for death at home
  3. Care Education
    - Ways to provide comfort care, common symptoms
  4. Emergency Provision
    - Who to call, for what, and when
    - Link to a 24 hour phone support service
  5. Review of family coping
    - Grief and spiritual care needs
    - Funeral arrangements
    - Discuss anticipatory grief with family, ask about support and coping systems (consider screen for complicated bereavement)
    - Financial concerns (meds, equipment, need for respite, employment leave)
  6. Preparing for the family for the dying process
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5
Q

Employment leave for caregivers in Canada

A

Compassionate Care Benefit
- Federal programme in Canada, 26 weeks of EI and job security for people caring for dying loved one

Caregiver Benefit (NS)
- $400/week if providing >20 hrs care per month

CPP Survivor Benefit

  • Death benefit (one time payment)
  • Survivor Benefit (monthly pension payments)
  • Children’s Benefit (monthly benefit, Child <18, or 18-25 and in higher education)
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6
Q

What common medical problems should be discussed at EOL

A
  1. Pain
  2. Dyspnea
  3. Nausea
  4. Constipation
  5. Respiratory secretions
  6. Delirium
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7
Q

Changes to expect in someone actively dying

A
  • Decreased functional status, more time in bed
  • Decreased PO intake (eventually impossible) and warning that pressuring or forcing to eat may cause increased nausea or aspiration
  • Survival with no PO intake may be 7-10 days (rarely longer)
  • Mouth care, eye care, skin care
  • Turning off ICD (pacemakers okay)
  • Need to change to subcut meds when no longer able to swallow
  • Catheter PRN in case of urinary retention
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8
Q

Signs that death is imminent

A
  • Cheyne-Stokes breathing (progressively deeper breaths, then lighter breaths until a period of apnea, repeatedly)
  • Decreased LOC
  • Mottling of extremities
  • Cool extremities
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9
Q

Excessive respiratory secretions at end of life

A
  • ‘death rattle’ can occur in up to 90% of patients
  • Advise that it is not uncomfortable, but may be distressing for family

Pathophys

  • Increased production of airway secretions
  • Decreased mucociliary clearance
  • Ineffective cough reflex
  • Pulm edema or resp infection

Treatment

  • Positioning
  • Avoid suctioning (distressing)
  • Scopolamine 0.2-0.4mg subcut q2H (crosses blood brain barrier)
  • Glycopyrrolate 0.2-0.4mg subcut q2H PRN (does not cross BBB)
  • Atropine drops (2 drops SL q4H PRN)
  • Lasix if pulm edema is suspected (and consider catheter)
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10
Q

Terminal phase - definition

A

Period of irreversible decline in functional status prior to death

Lasts hours to days, occasionally to weeks

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11
Q

Signs of the terminal phase

A
  • Weight loss
  • Profound weakness and fatigue
  • Social withdrawal
  • Disinterest in food and drink
  • Dysphagia and difficulty in swallowing medication
  • Refractory delirium
  • Changes in breathing
  • Drowsy for extended periods of time
  • Reduced urine output
  • Skin that is cool to touch
  • Waxy look to skin
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