(4) ETHICS Flashcards

1
Q

Define consent

A

○ Researchers inform all participants of aim & the right to withdraw
○ Participants issued consent letter, if under 16, parents sign

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2
Q

What are the alternative forms of getting consent

A

§ Presumptive consent
□ Similar group asked if study is acceptable to do on og group, if yes, study is carried forward
§ Prior general consent
□ Participants asked prior to any study if they consent to being part of studies in general
§ Retrospective consent
□ Participants asked after study is completed

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3
Q

What should be included in a consent form

A

○ Writing a consent form:
§ Aims of study
§ Details of procedure
§ Refer to ethical issues
□ Make clear there is right to withdraw
□ Keep data confidential
§ Formal - box for participants to sign

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4
Q

Define protection from harm and how it can be dealt with

A

• Protection from harm
○ Not put participants at more risk than in daily lives
○ How to deal with it:
§ Offer counselling after
§ Debrief participants and let them know their behaviour was normal

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5
Q

Define deception

A

• Deception
○ Misleading/withholding info

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6
Q

Define debriefing and what to include in a debriefing form

A

• Debriefing
○ Researcher must debrief participants before they leave the setting
○ Writing a debrief form:
§ Reveal true nature of study
§ Offer right to withdraw data
§ Offer counselling and invite q’s

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7
Q

Define confidentiality and privacy

A

All data kept confidential (unless agreed to otherwise)
All participants given alias/pseudonym if remaining anonymous

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8
Q

Define withdrawal

A

Participants have the right to leave
Participants have the right to withdraw data

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9
Q

What are the 6 ethical issues

A

Consent
Protection from harm
Deception
Debriefing
Confidentiality & privacy
Withdrawal

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