16 - 3 Flashcards
Home Care
(end of life care)
Person is in a familiar setting
—–In the company of family and friends
Often a 24hr/d job
—-Family members are often not able to provide this level of care
—–Home care assistance can be obtained but is often quite expensive
—–Not covered by public or private insurance
—–Institutional care may be necessary
55% of deaths still occur in hospital
Hospital-Based Palliative Care
Collaborative, team-based approach designed to relieve the suffering of serious or life-threatening diseases
Goal is to improve the quality of life in the waning days of a person’s life
Focus is on the controlling pain and caring for the physical, psychological, spiritual and existential needs of the patient
Hospice Palliative Care
Designed for persons wishing to die at home in their residential care facility or more peaceful hospital environment
Well known form of palliative care in Canada
Similar to hospital-based care, the move is from a curative model to accept there is no cure and reducing the aggressiveness of any further treatment
Allows the patient to determine where and when they die
—-Remote Indigenous communities often must move their loved ones away from the community
——Access to song, prayer and smudging can support the individual and family through the dying process
Difficult Decisions at the end of Life
Medical interventions may cause more suffering than necessary
——The question becomes whether the treatment is worse than the illness
——Keeping patients alive at all costs is being questioned
Should a patient be kept alive only by artificial support?
——-These questions are ethically challenging and painful for all faced with them
——The question is important to answer nevertheless
Withholding or Withdrawing Treatment
The right to refuse treatment is established in medical practice and the law
——-The choice to forgo life-sustaining treatments involves refusing treatments that would be expected to extend life
——–This right is constitutionally protected
Having a clear advanced directive written when the patient was competent to make health care decisions is very helpful
Medical Assistance in Dying (MAID)
Known as physician-assisted death
——Physician provides or administers lethal drugs with the plans that the patient intends to end their life
——–Done at the patient’s request
1.Persons must be 18 years of age and mentally competent
- Eligible for health care services in province or territory
- Living with a grievous and irremediable medical condition
- Voluntarily request medical assistance in dying
- Provide informed consent
Do not need to have a terminal illness to qualify for MAID
2023 will see Canada as one of a few countries to allow adults with mental illness as the only underlying condition to access MAID
middle knowledge
A state of knowing when
a person both acknowledges
the reality of a threatening
situation and maintains hope
for a positive outcome.
Reflect a coping strength sustaining the will to live despite a bleak prognosis
Living with an illness that is life threatening and incurable can be described as a living-dying experience
From the diagnosis to treatment to the final days, a delicate balance must be maintained
Honesty to face reality as it is:
1. Hope for a positive outcome
2. If incurable – the hope for more time
3. As time runs out – changes to a pain free or “good” death
Kübler-Ross suggested five psychological stages to imminent death
(tasks of coping)
denial, anger, bargaining, depression,
and acceptance.
DABDA
individuals go back and forth among
the stages during an illness, and different stages can occur simultaneously
Corr and colleagues distinguish 4 primary dimensions:
(tasks of coping)
- Physical: Satisfying bodily needs and
minimizing physical distress. - Psychological: Maximizing a sense of security, self-worth, autonomy, and
richness in living. - Social: Sustaining significant relationships and addressing the social
implications of dying. - Spiritual: Identifying, developing, or
reaffirming sources of meaning and
fostering hope.
The Tasks of Coping
Some may respond with a fighting spirit and see the illness as a challenge
——Take active part in their treatment
Others may withdraw and find peace in letting go
——The world becomes smaller and more intimate – ease into a peaceful place
life expectancy
The average
length of time a
person is expected
to live.
sarcopenia
loss of muscle mass
osteoporosis
bones become dangerously thin and fragile, making them very easy to break, even with a relatively minor
injury.
Fractures are the most serious consequence of osteoporosis
- Bone decay
arthritis
joint degeneration
Inflammation and
swelling of a joint
or joints, usually
causing pain and
stiffness.