UNG BOY DMD - 1 WAY EXTUBATION DECISION Flashcards
1
Q
16m progressive DMD. Ventilated for 5wks. Ventilated 5 occasions previously. Cardiomyopathy & ionotrope dependent.
A
Mum with extensive hospital experience.
Know what boy has said about his treatment.
2
Q
Dire situation. Disease is progressive Final stages of disease Less likely to get out of ICU Consider other family member in decision making
A
Mum focus on her own opinions & wishes than son’s
Forceful advocate
Hold hope for cure.
Futility by medical staff may have damaged trust.
3
Q
Listen ask about previous meetings previous ICU admissions explain clinical situation Ventilation hard to wean Discuss quality of life, value & son's expressed wishes Focus on best interest of pt
A
How do u think things are going?
Can u tell me what u have already been told?
Did u & mark ever talk about this sort of situation?
What would mark say to me today, if he was able?
Do u think anyone else should be here?
Would u like anyone else to be here with u?
