Team Care, Surgical Repair, and feeding Flashcards

1
Q

Who is typically on a team?

A

Audiologist

Pediatric dentist

Geneticist

Neurosurgeon

Nurse

Oral surgeon

Orthodontist

Otolaryngologist (ENT)

Pediatrican

Plastic/Craniofacial surgeon

Prosthodontist

Psychologist

Social worker

SLP

Team coordinator

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2
Q

What is the minimum members for a cleft palate team?

A

Surgeon

Orthodontist

SLP

At least one additional specialist

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3
Q

What are the advantages of Team Care? (4)

A
  1. Multiple disciplines treating patient
  2. Centralized services with centralized coordination/scheduling of appointment
  3. Long-term treatment planning from birth to adulthood (same people)
  4. Maximize communication between specialists
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4
Q

When does lip tapping usually happen?

A

birth, in hospital typically

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5
Q

When does lip repair usually happen?

A

3 mos, rule of 10’s

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6
Q

When does a palate repair usually happen?

A

12 mos.

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7
Q

When does a speech follow-up usually happen?

A

every 6-12 months or sooner

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8
Q

When does lip revision usually happen?

A

after age 5-6, ideally early teenage years (9-12yrs); avoid midface growth deficiencies

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9
Q

When does maxillary expansion occur?

A

6-9 years

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10
Q

When does bone grafting happen?

A

9-12

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11
Q

What is the general timeline for surgical, speech and dental intervention for CLP?

A
  1. Lip taping = birth, in hospital
  2. Nasal-Alveolar molding
  3. Lip repair = 3 mos., rule of 10’s
  4. Initial S&L Eval
  5. Palate repair = 12 mos
  6. Post-op speech eval
  7. Speech follow-up every 6-12 months or sooner
  8. Lip revision = after age 5-6, ideally early teenage years (9-12yrs); avoid midface growth deficiencies
  9. Secondary surgical revision to palate if needed
  10. Maxiallary expansion, 6-9 years
  11. Bone grafting, 9-12 years
  12. Orthodontics
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12
Q

What is the job of the nurse? (3)

A
  1. Assesses overall physical development, growth, nutrition
  2. Often assists family in feeding techniques, w/ help and direction of the SLP
  3. Counsels family re: surgeries, and answers specific questions
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13
Q

What is the job of the Geneticist/Dysmorphologist?

A
  1. genetic evaluation
  2. identify a known syndrome, if it exists
  3. Long term follow-up
  4. Genetic Counseling
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14
Q

What do Geneticist/Dysmorphologist do in genetic counseling?

A
  1. Diagnosis
  2. Recurrent risk for additional offspring
  3. Prognosis
  4. Identify services that may be needed later
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15
Q

What is the job of the Neurosurgeon?

A
  1. Evaluation and treatment of patients with craniofacial syndromes
  2. Monitors intracranial pressure and brain anomalies
  3. Surgery, when necessary
  4. Often works w/plastic surgeon
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16
Q

What is the job of the Ophthalmologist?

A
  1. Evaluates congenital eye anomalies and other ophthalmologic conditions
  2. Evaluates and treats vision
  3. Monitors effects of increased intracranial pressure on vision
  4. Surgery, when needed
17
Q

What is the job of the Otolaryngologist?

A
  1. Monitors ME function and hearing
  2. Treats ME disease
  3. Assesses structural aspects of oral cavity, oropharynx, nasal cavity, upper airway.
18
Q

What is the job of the Pediatrician?

A
  1. Assesses overall medical health, growth, and development
  2. Determines if other aspects of medical care should be done prior to surgeries
  3. Often gets initial contact or referral
19
Q

What is the job of the Social Worker?

A
  1. Assists families w/ problems
  2. Coordinates appointments
  3. Assists in dealing with other agencies (e.g., insurance companies)
  4. May help family manage stress and emotional reactions (e.g., psychiatric social worker)
20
Q

What is the job of the Team Coordinator?

A
  1. Team representative to parents, professionals, and community
  2. Plans meetings, schedules patients, coordinates appts
  3. Complies recommendations, prepares team report
  4. Ensures follow-up on recommendations
21
Q

What is the job of the Speech-Language Pathologist?

A
  1. Counsels parents re: comm. skills & how to stimulate normal S/L dev. @ home
  2. Evaluates feeding & swallowing
  3. Feeding tx and/or parent training
  4. Assesses and treats speech and language problems when appropriate
  5. Community outreach to treating SLP with CFT SLP
22
Q

What is the SLP’s ongoing role?

A
  1. Provide input to CF team
  2. Provide ongoing support and direction to family/patient
  3. Re-evaluates yearly to monitor progress
  4. Assists in developing and implementing plan for service provision
  5. Initiating referrals for further assessment with ENT, CF team, Dental, Genetics, Developmental Pediatrics
  6. Resource to community
23
Q

What is the role of SLP: Craniofacial Team Meetings?

A
  1. Determine present level of performance related to speech/resonance
  2. Prognosis for improvements w/ or w/o therapy
  3. Potential influencing factors on progress
  4. Assesses ability to tolerate further testing (i.e., Fluoroscopy, endoscopy, post surgical recovery etc.)