Chronic Illness and Quality of life Flashcards
Disease
condition practitioner views from pathophysiological model
Illness
human experience of symptoms and suffering
How disease is perceived, lived with and responded to by individual and family.
Is a unique experience.
Goals
- Advocate for the patient with a chronic illness through knowledge and continual education
- Provide individualized information and care that enhances patients QOL
Most Disabling Chronic Conditions:
Arthritis Hypertension Hearing impairment Heart disease Cataracts Stroke Cancer Obesity Diabetes
Multidimensional Impact of Chronic Illness(Quality of Life): Physiological
Altered body function (Ostomy)
Multisystem effect of insulin deficiency
Prevent medical crisis and learn how to deal with them if they occur
Multidimensional Impact of Chronic Illness(Quality of Life): Physical
Symptom management
Loss of limbs or paralysis
Sexual
Multidimensional Impact of Chronic Illness(Quality of Life):Occupational
May need to decrease, suspend or end work (retire early)
Caregiver may need to terminate employment to care for loved one
Multidimensional Impact of Chronic Illness(Quality of Life): Financial
Finding money for healthcare and living
Causes of financial burdens and drains to financial resources
–Insurance rates
–Out-of-pocket expenses for items not covered
–Transportation
Multidimensional Impact of Chronic Illness(Quality of Life): Psychosocial –
required adjustment to changes associated with the disease
-Stigma
Physical deformity, character blemishes, prejudice
-Isolation – challenge to prevent
-Uncertainty: Regarding exacerbations & remission; lifespan- confront own morality
-Family relationships
Role changes (role reversal)
Issues r/t altered sexuality
Caregiver stress
Ineffective family coping
Anticipatory grieving
Four factors that influence adjustment to chronic illness:
- Knowledge of illness and therapies
- Coping resources
- Problem-solving skills
- Personal mastery as well as motivation
What is Quality of Life?
Physical well being Functional well being Emotional well being Social well being Spirituality Financial stability
Quality of Life description:
Feeling of overall life satisfaction
Appraisal is subjective and includes all domains of life