7. CHRONIC ILLNESS EXPERIENCE Flashcards
- What is a Chronic Illness?
- chronic illness refers to a condition which is long-term
- chronic diseases can last for a life-time
(EG: diabetes, multiple sclerosis, end-stage kidney failure disease) - long- term conditions have an impact on the patient’s life
(EG: physical and social restrictions, treatments)
- Why is chronic illness a largely contemporary phenomenon?
CONTEMPORARY= belonging to or occurring in the present
- this is because of ageing societies and modern lifestyles
- people live longer but they are likely to live with a chronic condition over a large period of time before they die
- What is Prevalence of Chronic Illness?
- 18% of people aged 16 or older report a chronic condition
- 51% of women and 43% of men aged 75 or older have a chronic condition
- a significant increase of chronic illness is observed at the age of 45
- the older one gets, the higher the chance of them developing a chronic illness
- List the following:
4.1: the impairment
4.2: the disability
4.3: the handicap
4.1: the spinal cord injury
4.2: not being able to walk
4.3: not being able to find a job or obtain higher education
- What is an impairment?
Provide examples.
- it is the abnormalities in the functioning of the body
EG: multiple sclerosis, diabetes, heart disease, any medical condition or malfunctioning
- What is a disability?
Provide examples.
- it is the inability to perform an activity in a manner considered normal for a human being
- the disability arrises as a result of the impairment
- the physical, noticeable manifestation of the impairment
EG: walking with support
- What is a handicap?
Provide examples.
- it is a social disadvantage which results from the inability to fulfil a role that is normal
- it is the social disadvantage resulting from the impairment/disability
EG: disadvantage due to the inability to have full-time employment
- What is the meaning of Chronic Illness?
- it beings about disadvantage and deprivation
- How do disadvantage and deprivation manifest with regards to the life led while having a Chronic Illness?
- there is a difficulty to manage the symptoms
- difficulties to manage the treatment
(EG: medication, lifestyle change, diet) - the adjustment to a new life
- the struggle to adapt a new role (the sick role) in society and in your community
- psychological distress
- dependence on others
- social isolation
- What are the Psychological changes in the patient as a result of their chronic illness?
- uncertainty
- it is one of the consequences of chronic illness
- it takes three forms
- What are the three types of uncertainty a patient may face?
- FORM ONE:
- chronic patients may feel uncertainty about the cause of their illness
(why me and why now) - FORM TWO:
- chronic patients may feel uncertainty about their functionality
(will I be able to do things now)
(what will happen to me in terms of my functionality) - FORM THREE:
- uncertainty relating to feelings about prognosis
- how they prognosis will manifest in the future
(what will happen to me)
( what will happen to the me if the condition continues to worsen)
- When are feelings of uncertainty stronger in a patient?
- when the patient has many social obligations to fulfil
- What feeling do people first feel when they are diagnosed with a chronic illness?
- they first feel uncertainty
- List the four ways in which familial relations are affected when a person is diagnosed with a chronic illness?
Provide examples
1: there is a reallocation of tasks
EG: house work, the healthy partner works more hours to compensate for the loss of work hours and salary
2: chronic patients may feel like they are a burden to their family
EG: a patient with end-stage kidney disease feels as though they are a burden and so they refuse any further assistance
3: chronic patients may withdraw from family life
EG: patients may no longer participate in family gatherings
- marital breakdown is quite common
EG: the healthy spouse breaks up with the patient
- List the 2 biographical disruptions that are experienced by patients who are diagnosed with a chronic illness.
Provide examples.
1: the patient’s daily life is disrupted
EG: a patient with cancer who has to withdraw from daily activities in order to undergo chemotherapy
2: the patient may lose what they understand as the most important contexts of life
EG: career, family, purpose
: this is a disruption of their identity (biography)
: this can cause them to experience chronic stress
: chronic stress is associated with lack of adherence
: chronic stress also causes other health problems
EG: cardiovascular disease
- What does managing chronic illness relate directly to?
- to the access a patient has to necessary resources
- these resources are vital for supporting independent living
- What are 5 examples of resources that are necessary for a person dealing with a chronic illness to survive?
- health care
- proper housing
- shopping
- psychological support
- social networks
- Read through this summary.
Does everything make sense?
- yes