Special Needs Children Flashcards

1
Q

Children w/ Special Needs

A

those who have or are at risk for a chronic physical development, behavioral or emotional condition beyond needs generally required by children
-may have terminal illness

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2
Q

Resources or services that might be needed?

A
  • prescription meds
  • medical care
  • mental health/education services
  • physical, occupational, or speech therapy
  • financial assistance
  • family support
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3
Q

Impact on Infant

A

may fail to develop a sense of trust and bonding

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4
Q

Impact on Toddler

A

may have difficulty developing autonomy

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5
Q

Impact on Preschooler

A

may have difficulty achieving sense of initiative

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6
Q

Impact on School Age

A

may have difficulty achieving industry

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7
Q

Impact on Adolescents

A

may have difficulty forming a sense of identity

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8
Q

Impact of Special Needs Child on the Family

A
  • multitude of emotions and changes in their lives
  • may be overwhelmed w/ burdens of continual care
  • may experience fear, ager, sadness, guilt, frustration, or resentment
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9
Q

Stressors on Daily Life

A
  • housing situation changes
  • sleep affected
  • carrying out basic ADL’s affected
  • medical/technical care must be incorporated
  • family identity and employment may be altered
  • extended burden may affect health of caregiver
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10
Q

Transition Times for Special Needs Child

A
  • initial diagnosis or change in prognosis
  • increased symptoms
  • when child moves settings
  • during parent’s absence
  • during periods of developmental change
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11
Q

Risk Factors for Vulnerable Child Syndrome

A
  • preterm birth
  • congenital anomaly
  • newborn jaundice
  • handicapping condition
  • accident or illness the child was not expected to recover from
  • crying/feeding problems in the first 5 yrs
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12
Q

Focus of Nursing Management

A
  • case management and advocacy
  • screening and ongoing assessment of child
  • provision of home care
  • education and support
  • referral for resources
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13
Q

Promoting Home Care for the Technology Dependent Child

A
  • provide early discharge planning
  • provide care and care coordination at home
  • provide ongoing follow-ups and routine visits
  • assess growth and development
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14
Q

Long-term Risks for Premature Infant

A
  • cognitive delays
  • cerebral palsy
  • attention deficit disorder
  • learning disabilities
  • difficulty w/ socialization
  • vulnerable child syndrome
  • alterations in muscle tone
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15
Q

Organic Causes of Failure to Thrive

A
  • inability to suck/swallow correctly
  • malabsorption
  • diarrhea
  • vomiting
  • alterations in metabolism and nutrient needs associated w/ chronic illness
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16
Q

Resources for Child w/ Special Needs

A
  • educational opportunities
  • financial responsibilities
  • respite care
  • complementary therapies
17
Q

What does respite care offer?

A

opportunity for families to take a break from the daily intensive caregiving responsibilities

18
Q

Transitioning to home care can cause what?

A

Constant care stress on the primary caregiver

19
Q

Complementary Therapies used by Families w/ special needs children

A
  • homeopathic and herbal medicine
  • pet therapy
  • hippotherapy
  • music
  • massage
20
Q

Components of Transition Planning

A
  • multidisciplinary care coordination
  • acknowledgment of the changing roles among the youth, family, and health care professionals
  • fostering youth self determination skills
21
Q

By age 14 the family should ensure that what?

A

a transition plan is initiated and that the IEP reflects post high school plans

22
Q

By age 17 the family should?

A

explore health care financing for young adults

23
Q

The teen should be notified that?

A

all rights transfer to him or her at the age of majority

24
Q

The month the child turns 18 you should check?

A

the teens eligibility for SSI and SSI work incentive

25
Q

By age 21 the family should ensure?

A

the adult has registered with the Division of Developmental Disabilities for adult services

26
Q

Teaching Points during Transition to Adult Care

A
  • treatment rationale
  • symptoms of worsening condition
  • danger signs
  • when to seek help
  • medical insurance process
  • detailed plan of care
  • consultation w/ transition services coordinator
27
Q

What must be taken into consideration when making decision about DNR’s?

A

quality of life

28
Q

When is comes to DNR’s health care professionals must?

A

assure families that the focus of care is changing and the child is not being abandoned

29
Q

DNR Orders

A

“do not resuscitate”

-withholds cardiopulmonary resuscitation if child’s heart stops beating

30
Q

In some institutions DNR is being replaced with what?

A

AND - “allow natural death”

31
Q

Guidelines for Organ Donation

A
  • discussion separate from impending death or brain death notification
  • written consent necessary
  • all expenses are borne by recipient’s family
  • child’s appearance will not be marred
  • family culture and spiritual beliefs must be considered
32
Q

Last Acts Palliative Care Task Force

A
  • respecting child’s goals, preferences, and choices
  • comprehensive caring
  • using the strengths of interdisciplinary resources
  • addressing care giver concerns
  • building systems and mechanisms of support
33
Q

What is the focus of palliative care?

A
  • managing pain and discomfort
  • providing nutrition
  • providing emotional support
  • assisting family through grief
  • providing support/education dying child needs according to developmental stage