Nurb end of life comm loss and final hours Flashcards
: acknowledging vulnerability, intuition, empathy, being in the moment, and serenity and silence.
Presence requires
everyone grief is their own, never say that you know how they feel
-setting the right atmosphere: who you want in the room, take to private room, spoke slowly and calmly, say pt died then stop, gave them time does the family want to talk, attentive listening
Effective Communication:
: the patients current medical status including the likely course if no treatment, interventions that might improve prognosis, professional opinion about alternatives available to the patient, recommendation from physician
disclosure
: take reasonable precautions to ensure that such information is not inappropriately divulged
confidentiality
: legal term, practical application of respect of the patients autonomy
informed consent
: ability to understand or to make choices, ability to understand relevant information, appreciate the medical situation and its possible consequences, communicate a choice, goal in relation to the recommended treatment options
decisional capacity
: frequently concerned that when crucial decision must be made about their medical care, no longer capable of participating in those decisions, solution to the problem, essential that patients discuss these concerns with their family and their health care provider, record in patients record
Advanced care planning
from medical paternalism to patient self-determination, requires that all hospitals receiving federal funds must ask patients at the time of admission whether they have advance directives
Patient self-determination act:
- person appointed by a judge to act on behalf of a minor when the court system has determined that the minor requires protective oversight of person and estate, not all state offer
Court appointed guardian
-person or organization appointed by the court to care for an adult who cannot care for self or manage life eof decisions
court appointed conservator
- person who is authorized to make a decision on behalf of another who is incapacitated, next of kin have been considered the natural, family members for the consent
surrogate
- Patient family expectations
- Palliative care planning
- Verbal and non-verbal communication
- Listening/ silence
- Presence
- Guidelines for encouraging free conversation
BARRIERS TO COMMUNICATION
2. Myths/Realities of communication
A. Communication process
A. Family system
B. Financial/educational
C. Physical Limitations
D. Health care professional
Factors Influencing Communication
- Lack of continuity of care among caregivers
2. Lack of support (physical or emotional) among family members
Factors Influencing Communication
Family system
: Financial insecurity/ Anxiety, stress, grief/ Inability to comprehend/communicate
Factors Influencing Communication
Financial/educational
Sensory changes, Sleep deprivation, Inability to comprehend/communicate
Factors Influencing Communication
Physical Limitations:
- Behaviors and communication style be aware
- Communication barriers
- Family meetings/ breaking bad news
- Communication strategies to facilitate end-of-life decision
Factors Influencing Communication
Health care professional
: review medical issue and history, coordinate health care team, discuss goals of meeting with team, identify a meeting leader among the health care team, discuss with family members, arrange private quiet and location, minimize distractions
Recommendations for conducting a family meeting
1. Prepare for meeting
: intro all in attendance, review med situation, establish goal of meeting “everyone understands and answer all questions”
Recommendations for conducting a family meeting
Open the meeting
: ask family question “what do you know about the patient’s conditions” Follow up question: is there anything that isn’t clear that we can help to explain”
Recommendations for conducting a family meeting
Elicit family understanding
A. open ended questions= what are your hopes? What are important for the patient?
B. understand ethnic and cultural influences
C. maintains focus on the pts perspectives, can help to relieve guilt that family members may feel over making decisions
D. dealing with decisions that need to be made:
E. close the meeting
follow up on the meeting
Recommendations for conducting a family meeting
Elicit Patient and Family Values and Goals:
offer brief summary, ask for any final questions, statement of appreciation and respect for the family, make a clear follow up plan family and how to contact health care team
Recommendations for conducting a family meeting
Elicit Patient and Family Values and Goals:
E. close the meeting
document the meeting in chart, follow up any information or reassessment agreed upon during the meeting
Recommendations for conducting a family meeting
Elicit Patient and Family Values and Goals:
follow up on the meeting
common understanding of issues, “have you decided what you want and don’t want?”, open ended assessments then specific interventions, offer clear recommendations, coming to an understanding, check understanding of decision s made
Recommendations for conducting a family meeting
Elicit Patient and Family Values and Goals:
dealing with decisions that need to be made:
- : factual content, style of pt statements, emotional content
6 step protocol for breaking bad news
finding out how much the pt know
- physical context right
- finding out how much the pt know:
- find out how much the pt wants to know
- sharing medical communication:
- responding to the pts feelings
- planning and summarizing:
6 step protocol for breaking bad news
align, educate, give info in small amounts, use lamen terms, check reception frequently, reinforce the info, blend concerns and anxieties
6 step protocol for breaking bad news
4. sharing medical communication:
identify coping of pt and reinforce, other sources of support for the pt
6 step protocol for breaking bad news
6. planning and summarizing:
presence during cpr
in or out introduction now outcome relationship option understanding time
Family Presence yourself as a nurse, clearly short sentences, use pt name
during CPR: in or out
Introduction:
explain pt current status, lamen terms when explaining
during CPR: in or out
now
explain the possible results, realistic don’t give false hope, say work die
during CPR: in or out
outcome
learn who makes the decisions, next of kin
during CPR: in or out
relationship
: assess comprehension, prepare the family for what see and hear, reassure they can leave if they wish
during CPR: in or out
understanding
take action, when is it time to go in, alert healthcare team that family is entering the room, if family behavior is disruptive let the family know behavior is making it hard for the healthcare team to do their best work
during CPR: in or out
time
Interdisciplinary team, Resolving conflict
Team Communication:
: loss for words at least say I am sorry for your loss, it is okay to say I don’t know
. Summary
eof
- be prepared, be brief, tell the truth, listen carefully, be reassuring, be yourself
: gear info toward dev age younger concrete and older abstract, begin with child experiences
: begin with basic info
: look for clues to talk, accept w.e emotion is presented
: ask to summarize what they heard, clarify misunderstandings
: books movies, name people who have had it
Talk to children about death: Begin on the child’s level: Let the child’s questions guide Provide opportunities for the child to express feelings Encourage feedback Use of other resources