Week 2: Evaluating Service User Involvement

Question 1

Direct, often aggressive, methods used to challenge or oppose systems or institutions.

Examples:
Sit ins
Picketing
Boycott

Answer 1

Confrontational Approaches

Question 2

The belief that individuals should be empowered to make informed choices as consumers.

Examples:
Focus Groups
Consumer Advocacy Groups
Informed Consent

Answer 2

Consumerism

Question 3

A philosophical approach that emphasizes practical consequences over abstract theories.

Examples:
Cost Benefit Analysis
Trial and Error
Problem-Solving

Answer 3

Pragmatism

Question 4

Beliefs or doctrines that advocate for fundamental changes to society.

Examples:
Feminism
Environmentalism
Anarchism

Answer 4

Radical Ideology

Question 5

The active participation of individuals who receive mental health services in decision-making and research processes.

Answer 5

Service User Involvement

Question 6

Is a research network focused on mental health. It’s a platform that brings together researchers, clinicians, service users, and policymakers to collaborate on mental health research projects.

Answer 6

Mental Health Research Network (MHRN)

Question 7

What are the benefits of patient involvement in research?

Answer 7

1) Recruitment Success = 90%
2) Funding bodies (i.e., National Institute for Healthcare Research)
3) Democracy and empowerment of service users
4) Identification + prioritization of relevant research topics
5) Eliciting richer data (participants share personal and stigmatizing information)
6) Generation of representative and robust findings
7) Evidence that user involvement increases the likelihood of a study’s success

Question 8

3 Different Levels of User Involvement

Answer 8

1) Consultation: researcher-initiated
2) Collaboration: jointly initiated
3) User Control: user-initiated

Question 9

The most superficial or short-term level of involvement, where users are asked for their opinions or feedback but have limited influence over decision-making.

Answer 9

Consultation

Question 10

A more active level of involvement where users work together with researchers as equal partners in all stages of the research process.

Answer 10

Collaboration

Question 11

The highest level of involvement where users initiate and conduct their own research, with minimal or no involvement from researchers.

Answer 11

User-Control

Question 12

Is a national advisory group that supports public involvement in health and social care research.

Answer 12

INVOLVE

Question 13

Peter Beresford highlighted a concern in service user involvement. What was it?

Answer 13

“recent interest in service user knowledge is part of broader pressure from funding bodies to increase user involvement”

Question 14

What solutions did Peter Beresford recommend to challenge the imbalance/inequalities?

Answer 14

1) Ongoing review and evaluation
2) Commitment to and training in inequality of opportunities
3) Specific strategies for involving excluded groups
4) Clarity on the issue of representation
5) Evaluation of participation

Question 15

Regularly assessing organizational policies and practices to identify and address biases.

Answer 15

Ongoing review and evaluation

Question 16

Ensuring that all individuals have equal access to opportunities for involvement and participation.

Answer 16

Commitment to and training in inequality of opportunities

Question 17

Developing tailored approaches to reach and engage marginalized populations.

Answer 17

Specific strategies for involving excluded groups

Question 18

Ensuring that the voices of all relevant groups are represented in decision-making processes.

Answer 18

Clarity on the issue of representation

Question 19

Assessing the inclusivity and diversity of involvement initiatives.

Answer 19

Evaluation of participation