Patient and public involvement in research Flashcards
patient
someone in direct reciept of services
public
someone who may have been in patient but now have a broader view of research
involve
public involvement in research as research being carried out ‘with” or ‘by’ members of the public rather than ‘to’ ‘about’ or ‘for’ them
involvement
people activly involved in planning and delievring research
paricipation
where people are research participation
consultation
where info and knowledge about research is provided , share and discussed with wider public
reach in going the extra mile review(GEM)-NIHR policy review
extent to which people and communities are engaged , paricipating in NIHR research including diversty of population
refinement and improvement
how public involvement is adding value to research excellence funded by NIHR
Relevance
extent to which public pritorites for research are reflected in NIHR funding and activities
relationship
signifcant determinant of sucess in strenghting public involvement
national standards for public involvement
-inclusive opportunites
-working together
-support and learning
-communications
-impact
-goverance
3 key principles of co production
- sharing power
2.including perspectives and skills
3.respecting and valuing the knoweledge of all those working together on research
4.building and maintaing relationships
key features of coproduction
-establishing ground rules
-joint ownership of key decisions
-flexibility
public involevement in the research cycle
1.identifying the need
2.developing the research question
3.planning the methods
4.collecting data
5.anaylsing and interpreting data
6.writing up the findings
7.dissemination
8.implementation
