End of Life Care Flashcards
Palliative care
paid by insurance, self, Medicare, Medicaid
within hospital
Completed same time as curative treatment
Any stage of disease-time of DX
Prevention, relief and reduction in symptoms of disease
Hospice care
paid by Medicare or Medicaid
<6 months of life left
Excludes treatment/cure
Terminal patients
Completed at home
priority-manage pain, quality of life
When can palliative care be started?
as soon as diagnosis is given
Along with curative services
interdisciplinary team
Nurse
Physician
Pharmacist
Social worker
Chaplain
Communication with hospice care
Understanding the diagnosis of less than six months to live
Communication with palliative care
Understanding receiving curative treatment, but acceptance of illness stage
types of conversations
Family meeting
Nurse family conversation-goals, prognosis, support
Nurse physician conversation-advocate, plan
hard conversations
Fear of provoking distress
Lack of training
Don’t know the right words
Feel responsible
Handling outburst
Empathetic response
Don’t try to fix the emotions
nurse statements
accepting response
Validate feelings
Nonjudgmental
name the emotion
“I can see where this is scary”
understand
“ I can’t imagine what this is like”
respect the role of caregiver
Praise
“ I’m so impressed by…”
Support
“ we will be here for you the whole way”
Explore
“ tell me more”
“ I wish” statements
“ I wish we had more treatments for you”
“ I wish we had a surgery for you”
Demonstrates alignment with patient
Acknowledges it won’t happen
“ I worry” statements
“ I worry that waiting another week will…”
“ I worry that without a caregiver…”
Shares possibilities of bad outcome
Advanced care planning
Receiving information
Empowerment
Learning
Being in control
Thinking about end-of-life
Fear of confrontation
Worry about burning family
Routine treatment can ease unpleasantness
is advance care planning written, or verbal?
Written documents, discussing illness and end of life process
living will
Written document of patients wishes of medical treatment if patient becomes unable to communicate it
MOST
Portable documents of healthcare provider orders of patients carried by physician
Kentucky Living will
healthcare surrogate
No attorney needed
2 witnesses or notarized
Law prohibits relatives from being witness
Treatment wishes
Organ donation
five wishes
Advance directive
Legal document for medical treatment, comfort, and care
Must be filled out by patient who is competent
Two witnesses or notarized
Prompted
ethical issues
Informed consent
Withdrawing life-sustaining treatment
DNR’s
Artificial hydration/nutrition
Influences of end-of-life
ethnicity
Intracultural aspects
Family relationships
Class/socioeconomic status
Generation
death with dignity, medical Aided dying (MAID)
competent, terminally, ill upon request, counseling, interviewing
Receives lethal dose of medication to end own life
What is MAID not?
palliative sedation
Euthanasia
Pain medication
weeks-months-years
social withdrawal
Decreased food interest and appetite
Sleep extremes
Disorientation
Restlessness
Decreased senses
Incontinence
Decrease BP
Increased HR
Weight loss
hrs-days-weeks
early-bedbound, decreased eating and drinking, increased sleeping, delirium
Mid-decrease mental status, obtunded
Late- death, rattle, not responding, but still breathing, fever, apnea, mottled extremities
Is there a difference in morphine and hastened death?
No difference in survival
Morphine related toxicity
drowsiness
Confusion
Altered LOC
Prior to respiratory depression
anticipatory grief
Prior to death
Mirrors morning
Tangible and intangible losses