Session 8 Lecture 2- Patient Reported outcomes (PROMS)

Question 1

Give examples of commonly used measures of health

Answer 1

• mortality
• morbidity
• patient-based outcomes

Question 2

Why are Patient-based outcomes used?

Answer 2

• the patient perspective is key
• need to focus on patients concerns
• increase in conditions where the aim is managing rather than curing

Question 3

What is Health-related quality of life (HRQoL)?

Answer 3

The functional effect of an illness and its consequent therapy upon a patient as perceived by the patient

Question 4

Why is the measurement of Health-related quality of life seen as valuable?

Answer 4

it is multidimensional; covers the physical, mental, emotional and social functioning

Question 5

Types of PROMs? (patient-reported outcomes measure)

Answer 5

Genric

• can be used in any patient pop.
• e.g: EQ5D

Specific

• disease-specific e.g: asthma quality of life questionnaire
• site-specific e.g: oxford hip score
• dimension specific e.g:McGill Pain questionnaire

Question 6

Advantages of Generic PROMs

Answer 6

• can be used for a broad range of health problems
• can be used if there is no disease-specific instrument
• enable comparisons across treatments group

Question 7

Disadvantages of Generic PROMs

Answer 7

• inherently less detailed
• loss of relevance and becomes too general
• maybe less acceptable to patients

Question 8

Advantages of Specific PROMs

Answer 8

• very relevant content
• sensitive to change
• acceptable to patients

Question 9

Disadvantages of Specific PROMs

Answer 9

• comparison is limited

- may not detect unexpected effects

Question 10

Questions to consider when selecting PROMs

Answer 10

• Is it sensitive to change?
• Is it suitable for your area of interest?
• Is the instrument acceptable to patients?
• Does it adequately reflect patients concerns in this area?