Lecture 8.3 - Palliative Care Flashcards

1
Q

What is palliative care?

A

Focused on prevention and relief of suffering of a person with diagnosed with a life-limiting illness, and their families
–> Should be integrated at time of diagnosis

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2
Q

How does pediatric palliative care differ from adult palliative care?

A

Prognosis, life expectancy, and functional outcome is often unclear

Greater use of intensive disease-modifying or life-sustaining treatments

Focus on growth and development at the same time as death

Greater burden on families

Information, recreational, and educational needs change depending on the child’s age and as they grow

Greater number of congenital anomalies of uncertain type or rare genetic conditions

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3
Q

What are the main components of pediatric palliative care?

A

Pain and symptoms management

Maximizing QoL

End of life care

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4
Q

What is the goal of end of life care?

A

Is to preserve dignity and provide the person with the best death possible

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5
Q

How can we maximize quality of life?

A

Legacy Creation
Memory Making
Recreational Therapy

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6
Q

What is grief?

A

Feelings and emotions associated with actual or perceived loss

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7
Q

What is bereavement?

A

The journey a person goes through after suffering a loss

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8
Q

What is the major goal in working with a family of a child with a complex or chronic illness?

A

Support the family’s effective coping to overcome crisis, involve shared decision making and normalization of new challenges, patient teaching.

Promote appropriate development.

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