communication in End of Life Care Flashcards

1
Q

loss

A
  • Actual or potential situation in which something that is valued is
    • Changed –> Ex: body change
    • No longer available –> Ex: loved one has died
    • Gone
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2
Q

sources of loss

A
  • Aspect of self
    • Physical or mental capacities
  • External objects
    • Money, home, pets
  • Familiar environment
  • Loved ones
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3
Q

types of loss

A
  • Situational
    • Death of child
    • Loss of function
  • Developmental
    • Empty nest
    • Retirement
  • can never be prepared for how we feel
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4
Q

death and dying – late 1800s

A
  • Care = easing of symptoms
  • Most deaths occurred at home
  • Most die within days of onset of illness
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5
Q

death and dying – mid 1900s

A
  • Emphasis on disease prevention
  • Life saving & life prolonging techniques (CPR)
  • Death often equated with medical failure
  • abx = 1960s
  • went from easing to curing
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6
Q

death and dying – 2000s

A
  • Americans living longer
  • Period of time living with progressive illness prolonged
  • Families changing
  • Medicalization of care at EOL
  • Decreasing disparity between the way people die & how they want to die
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7
Q

learning of impending death

A
  • Denial
    • Protective: need the time to absorb it
  • Anger
    • Most expressed to those safest & closest
  • Bargaining: if you just let me stay alive till my daughter gets married then i’ll do whatever. 2nd opinion
  • Depression: mourning what they will lose and what they have lost
  • Acceptance
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8
Q

what do patients value?

A
  • Patient concerns
    • Receiving adequate pain & symptom management
    • Avoiding inappropriate prolongation of dying
    • Achieving a sense of control
    • Relieving burden
    • Strengthening relationships with loved ones
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9
Q

what do patients value?

A
  • Goals may shift as EOL nears
    • Discuss & continue to discuss
    • Greatest risk for non-discussion of dying
      • Slow decline from chronic disease
      • Metastatic cancer
      • Chronic renal failure on dialysis
      • ICU patient with underlying disease
  • 60-90% of those with life threatening conditions have not discussed EOL care with clinicians
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10
Q

advanced directives

A
  • General term used to describe documents that give instructions about future medical care and treatments and may indicate who should make decisions
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11
Q

types of advanced directives

A
  • DNR—Do not resuscitate (physician has to write the order)
    • No CPR in event of cardiac or respiratory arrest
  • Living Will: only has power if the ppl that need it know where it is
    • Specific instructions about what care patient wants and does not want
  • Durable power of attorney for health care –> someone so cog impaired they can’t make their own decisions
    • Appoints someone to manage health care treatments when patient is
      unable to do so
  • default = do everything possible unless you have a living will
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12
Q

general principles of palliative care

A
  • Total care of patients whose disease is not
    responsive to curative treatment
  • Patient & family unit of care
  • Meet patient/ family’s goals & values
  • Attend to physical, psychological, social & spiritual needs
  • Education of patient & family
  • Bereavement support
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13
Q

what does palliative care help with?

A
  • helps the pt and family know what options they have and what happens if they stop treatment
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14
Q

the hospice concept

A
  • Based on medieval concept of hospitality in which community assisted traveler at dangerous points along a journey
    • Community—interprofessional team
    • Traveler—dying patient & family
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15
Q

medicare

A
  • Part A eligible
  • Must be certified by 2 physicians as having < 6 months to live
  • Must wave further treatment for disease (no more treatment to curve me. moving towards comfort)
  • Certified for two 90 periods
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16
Q

true or false. many insurance plans also offer hospice coverage

A

true

17
Q

hospice providers

A
  • Medicare certified
  • In-home, in-patient, nursing home
  • Care, including medications, paid for (may
    have $5 copay for meds)
    • In patient room and board may not be covered
  • Can change provider once each benefit period
  • don’t provide 24 hr nursing care –> will come to help but won’t stay
18
Q

hospice provides

A
  • physicians’ services,
  • nursing care (intermittent with 24-hour on call),
  • medical appliances and supplies related to the terminal illness,
  • outpatient drugs for symptom management and pain relief,
  • short-term acute inpatient care, including respite care,
  • home health aide and homemaker services,
  • physical therapy, occupational therapy and speech/language pathology services,
  • medical social services
  • counseling, including dietary and spiritual counseling
19
Q

hospice does not cover

A
  • Treatment for the terminal illness which is not for symptom management and pain control;
  • Care given by another healthcare provider that was not arranged for by
    the patient’s hospice; and
  • Care from another provider which duplicates care the hospice is required to provide.
20
Q

key contribution of hospice

A
  • Helps patient and family re-establish control
  • Extensive assessment at intake
  • In 2018, mean total days in hospice for all Medicare
    patients was 77.9
    • 26.3% of all hospice patients spend 7 days or less in the program before death
21
Q

communication for “shifting lanes”

A
  • Patients/families need help with shifting lanes
  • Anticipate road blocks
    • Ability to look ahead & estimate whether planned care goal is still achievable
    • Perceptions of change in condition
    • Presentation of unrealistic expectations
    • Discussions about treatment complications or decisions
  • Gaining consensus
    • Complicated by
      • Prognostic uncertainty
      • Fear of causing distress
      • Navigating patient readiness
      • Clinician feeling unprepared
  • Family conference
    • Overall goal—family satisfaction with decisions
  • Health care team conference
  • Shifting gently
    • Instill confidence about HC teams ability to provide support
    • Break bad news “well”
22
Q

Breaking Bad News: SPIKES

A
  • Setting
    • Privacy, comfort
  • Perception
    • What does patient/ family know?
  • Invitation
    • How much does patient/ family want to know?
  • Knowledge
    • Give info in small, understandable chunks
    • Never say there is nothing more we can do
    • Ask family to summarize
  • Emotion
    • Respond with empathy—expect anger, fear, denial, guilt
    • NURSE
    • Name emotion—you sound angry
    • Understand
    • Respect
    • Support
    • Explore—tell me more
  • Support
    • plan for future
23
Q

An 82 year old man has been told by his nurse practitioner that it is no longer safe for him to drive a car. Which statement by the patient would indicate beginning positive adaptation to this loss?

A

A. “I told my son that I would stop driving, but I
am not going to yet.”
B. “I always knew this day would come, but I hoped it wouldn’t be now.”
C. “What does he know? I am a better driver than he’ll ever be.”
D. “Well, at least I have friends and family who can take me places.” (CORRECT)

24
Q

A dying patient is withdrawing, crying, making comments regarding the regret she will feel at not getting to see her grandchildren grow. Your best action is to

A
  • Hold her hand and allow her to express her feelings
25
Q

The nurse is caring for a 15-year-old client who is
dying. The client tells the nurse, “I know I am not
going home again. I think it is harder for my parents than me. Will you talk to them for me?” Which of the following is the best response by the nurse?

A
  • “Yes, I will talk to your parents, but you need to
    talk to them also. I will help you with that.”
26
Q

Which of the following is a characteristic of palliative care?

A

A. It only involves care of the client.
B. It provides grief support for family only while the client is alive.
C. It bears no resemblance to hospice care.
D. It is a clinical approach designed to improve quality of life (CORRECT)

27
Q

Which comments made by a patient show an understanding of the teaching on palliative care completed by the nurse?
(Select all that apply.)

A

a) “Even though I’m continuing treatment, palliative care can help manage my symptoms and improve my quality of life.”
b) “Hospice is a type of palliative care.”
d) “Children are able to receive palliative care.”

28
Q

Which interventions will the nurse implement to help a patient at the end of life maintain autonomy while in a hospital? (Select all that apply.)

A

b) Allow the patient to determine timing and scheduling of interventions.
c) Allow patients to have visitors at any time
e) Encourage the patient to eat when hungry –> eat whenever THEY feel like it