co-production Flashcards
What are the four main types of involvement in research?
- Engagement (talks, events, exhibitions)
- Consultation (advisory groups)
- Involvement (co-interviewers)
- Coproduction (equal partners in all stages)
What is the key principle of co-production?
“Nothing about us without us” - ensuring youth voices are included
What do these acronyms mean: PPIE, YPAG, LEAB, LEAP?
PPIE: Public and Patient Involvement and Engagement
YPAG: Young Persons Advisory Group
LEAB: Lived Experience Advisory Board
LEAP: Lived Experience Advisory Panel
What’s the difference between a Peer Researcher and Co-Researcher?
Peer Researcher: Researcher with lived experience
Co-Researcher: Young person employed as part of the research team
What are the main reasons for involving young people in research?
Scientific:
Improves study design and validity
Leads to more relevant and impactful research
Ethical and Social:
Ensures representation and empowerment
Practical:
Required by many funding bodies
Ensures findings are applicable and beneficial
What are the main types of research designs that can involve youth?
Qualitative Research
Creative Research
Participatory Action Research (PAR)
Quantitative & Cohort Studies
What are the key considerations when scaling up youth involvement?
Feasibility in large-scale studies
Strategies for scaling engagement
Identifying works and potential barriers
What are the main types of research methods involving children?
- Self-reported data (surveys, interviews)
- Observation of behavior (experiments, naturalistic observation)
- Records analysis (reviewing social care, school, health records)
- Proxy reports (from parents, caregivers, teachers)
How can young people be involved in research?
Identifying research priorities
Refining research tools
Co-designing interventions
Being study participants
Assisting with research dissemination
What are the key consent requirements for different age groups?
Over 16: Can give independent consent
Under 16: Need parental consent plus child’s assent
Gillick Competence determines child’s capacity to consent
What steps are involved in the safeguarding protocol?
- Researcher flags issue
- Consult PI/safeguarding officer
- Inform young person about disclosure
- Take appropriate action (referral/contact parents)
What documents are needed for research with children?
Information sheet
Assent form (under 16)
Consent form (16+)
Parent information sheet
Parental consent form (under 16)
What are the main research priorities in child & adolescent mental health?
Early screening
Youth involvement in treatment
Service collaboration
Early interventions
Support for waiting lists
Parent education
Suicide interventions
Family dynamics
Self-help strategies
School staff training
What are the final considerations for ethical research?
Research importance for children
Including children’s voices
Ensuring confidentiality/safety
Dissemination plans
Managing distress/safeguarding
