13. Patient Engagement and Patient-Centred Research

Question 1

Surveys for Measuring Patient Experiences

Answer 1

Patient Perception Surveys- From CISCRP (Centre for Information and Study on Clinical Research Participation)

Question 2

Most to least trusted organization types

Answer 2

1) research centers
2) government organizations
3) regulatory agencies
4) pharmaceutical companies

Question 3

SPOR

Answer 3

Canada’s strategy for patient oriented research

Question 4

Integrated Knowledge Translation (iKT) approach

Answer 4

• Patients as equal research partners
• Patients are meaningfully engaged throughout the research process

Question 5

ICFs

Answer 5

informed consent form