Week 4 lecture Flashcards
What is Fibromyalgia (FM)?
a syndrome characterized by widespread musculoskeletal PAIN and multiple tender points as well as high levels or self-reported disability and poor quality of life
How is FM diagnosed?
by process of elimination of other illnesses
What is FM seen as in terms of illness?
an Invisible disease!
- hard to diagnose with traditional medical testing
When doing medical testing for FM, how does the patient appear?
NORMAL!
What gender is most affected by FM?
WOMEN!
Do many patients with FM seek multiple doctors to get help to validate their pain?
Yes
Are many patients experiencing symptoms dissrespected because they seem fine by test but they are in pain?
yes
How does the process look like at the start for FM?
- typcially 30yrs old
- often a trigger (having a virus, car accident, etc.)
- CHRONIC PAIN
- diffuse (throughout) or localized (specific point) pain
- persistent pain (3 months +)
What is the pain like?
- VERY INTENSE
- feeling of knotted muscles
- feeling of swelling of extremities
- feeling of paresthesia
-painful points at tendinous insertions - increases when cold, fatigue or stress
What is another functional sign of FM?
sleep problems
What is the 2 classification criteria for FM?
- generalized, diffuse pain for over 3 months
- tender points sites on digital palpation in 11 of 18 indicated spots
What is Metasynthesis?
take all qualitative data and you analyze it into different themes to which you are studying
What were the 4 themes from the article (Sim & Madden)?
- Experience of symptoms
- Searching for diagnosis
- Legitimacy
- Coping
What is the theme “Experience of Symptoms”?
- PAIN is DUALITY! (constant and variable, localized and diffuse, etc..)
- invisible to others therefore hard to describe
-lack of sleep more disruptive than pain - lack of energy = impact personal relations and daily activity
-depression - cognitive difficulty –> impact employability
What is the theme “Searching for diagnosis”? (3 stages)
- Pre-diagnosis
- consult many
-array of tests
- fear - Receiving diagnosis
-relief
-validation –> makes them credible person - Post diagnosis
- trying many treatments
- very little relief
What is the theme “Legitimacy”?
-disagreement between appearance and ability to accomplish activities
- illness and person with illness in question (CREDIBILITY)
-stereotyping occurs
-some hide diagnosis and act normal like before
What is the theme “Coping”?
- adapt rhythm of activities (depends on person)
- social and family network are supportive
- professional help
- re-evaluation of your life
- can be +ve or -ve
What is essential to coping with FM?
the ability to UNDERSTAND their own illness!
What is the importance of the life course perspective?
-Helps us understand their life experience to better understand the experience of disability
- Early years lay down the foundation for health over a life course (CHILDHOOD EXPERIENCES)
What is Life-course approach?
- discusses disability across generations and across the many transitions between life stages
-very interdisciplinary from birth to death - placing a person’s life in a meaningful context
What is Life Trajectory?
looks at life stages longitudinally (0-death) or cross-sectionally (specific point in time)
Are life transitions important?
YES!
- create EXPECTATIONS in life about when stuff should happen
-when having a disability this can mess up these expected timelines and take a toll on a persons life
What are the central themes to the life-course approach (x4)?
- Family
- Health
- Politics, legislation, services
- Self-determination and participation
What is the central theme of Family?
- family relations
- advantage = exchange of resources (less able taken care of by more able)
- disadvantage = burden to natural caregivers
What is the central theme of Health?
- examine the health changes a person with a disability may experience over a lifetime
- CHILDHOOD EVENTS influence it!
- a person with a disability can be HEALTHY and FEEL healthy
What is the Central theme of Services?
-interactions between people with a disability and formal services for the disability
- can be +ve or -ve
- disadvantage = STIGMATIZING –> if your normal you will get better quickly but if you have a disability you require excessive dependency on these services
What is the theme of Self Determination and Participation?
- a person’s own will to make their own decisions and maintain/improve their quality of life
- positive results = better jobs, inclusion, physical and psychosocial health
- youth and adults with disability are LESS of this theme
GO LOOK AT THEMES IN RELATION TO LIFE ON SLIDEHSOW (slide 14- 30)
