Session 4 - Chronic Illness; Health-Related Quality of Life Flashcards
What is chronic illness?
is a term that encompasses a wide range of conditions, which are long term and tend to have profound influence on the lives of sufferers
Why is a detailed understanding of the impact of chronic illness and disability necessary for providers and social?
In order to offer appropriate care and support
Describe the onset of a chronic conditoon
o Symptoms can be striking
o More often they are slow in their onset
o Other explanations for the symptoms are often available
Give three issues which may face a patient recieving a diagnosis of chronic illness
Shocking
Threatening
A relief
What is biographical disruption?
Biographical disruption is a key sociological concept, identifying chronic illness as a major disruptive experience.
What is an illness narrative?
a way of making sense of the illness, and they perform certain functions.
What is narrative reconstruction?
Narrative reconstruction is a process by which the shattered self is reconstructed in ways that explain the appearance of illness.
Why do people reconstruct a narrative?
Narrative reconstruction comes from a desire to create a sense of coherence, stability and order in the aftermath of biographical disruption
Give five types of work in chronic illness
Illness work Everyday life work Emotional work Biographical work Identity work
What is illness work?
o Symptom management
o Central to the coping task is dealing with the physical manifestations of illness. E.g. eating, bathing, going to the toilet
What is eveyday life work?
o Managing daily living
o Try to keep pre-illness lifestyle and identity intact
o Re-designate new life as ‘normal life’
What is emotional work?
o Managing one’s own emotions and those of otherso
- Work that patients do to protect the emotional well-being of others
What are the two biggest impacts of emotional work?
o Impact on social relationships
o Impact on role
What is biographical work?
Loss and subsequent reconstruction of self
What is identity work?
Work to maintain an acceptable identitiy
o Illness can affect how people see themselves, and how others see them
Illness can become the defining aspect of identity
What is stigma?
A negatively defined condition, attribute, trait or behaviour conferring “deviant” status; a “spoiled” identity
Give four types of stigma
Discreditable stigma
Discredited stigma
Enacted stigma
Felt stigma
What is discreditable stigma?
o Nothing seen, but if found out…
o The stigma is yet to be revealed. It may be kept secret, revealed intentionally by the patient or by some factor the patient cannot control.
E.g. Mental illness, HIV
What is discredited stigma?
o Physically visible characteristic or well-known stigma that sets patient apart
o The patient is discredited, thus affects not only the patient’s behaviour but the behaviour of others
E.g. Physical disability, known suicide attempt
Give a condition that can be associated with both discreditable and discredited stigma
Epilepsy
What is enacted stigma?
o The real experience of prejudice, discrimination and disadvantage
o Discrimination has actually occurred
What is felt stigma?
o Fear of enacted stigma
o Encompasses a feeling of shame
o Discrimination has not actually occurred, felt stigma is the fear of it
What are the two models of disability?
Medical model of disability
Social model of disability