Quality of Life Flashcards
Quality of Life
“Health care decisions are made under uncertainty, whereby any decision may have a range of different outcomes. To make the “best” decision, potential outcomes need ordering and valuing. Such decisions are made both at the individual level, such as choosing the optimal treatment for a patient, and at the national level, such as choosing how to allocate resources between treatments for different patient groups and across different health conditions.”
Key words of quality of life
- life
-physical - satisfaction
- physiological
-social
WHOQOL-BREF (brief)
- Psychological
- Environment
-Social - Physical
- Social
Physical health
- Activities of daily living
-Dependence on medicinal substances and medical aids
-Energy and fatigue
-Mobility
-Pain and discomfort
-Sleep and rest
-Work Capacity
Psychological
- Bodily image and appearance
- Negative feelings
- Positive feelings
- Self-esteem
- Spirituality / Religion / Personal beliefs
- Thinking, learning, memory and concentration
Social relationships
- Personal relationships
- Social support
- Sexual activity
Environment
- Financial resources
- Freedom, physical safety and security
- Health and social care: accessibility and quality
- Home environment
- Opportunities for acquiring new information and -skills
- Participation in and opportunities for recreation / leisure activities
- Physical environment (pollution / noise / traffic / climate)
- Transport
Dijkers’s model of quality of life
1) social standards and priorities <> objective evaluations
2) achievements <>subjective evaluations and reactions
3) Individual ecxpectations and priorities
social standards and priorities
- Standards
- Values
achievments
Statuses
Performance
Possessions
Relationships
Accomplishments
Characteristics
Health
IndividualExpectationsand Priorities
Goals
Aspirations
Values
Standards
Desires
Needs
Wants
Health-related Quality of Life
- Clinical decisions often affect patients’ health-related quality of life (HRQoL).
- Evidence on patients’ HRQoL can be obtained using patient-reported outcome (PRO) measures.
Generic Measures
E.g. EQ-5D, Short Form 36 (SF-36) ,Nottingham Health Profile, The Sickness Impact Profile (SIP)
Wide variety of populations
+Usually a single instrument
+ Established reliability and validity
+ Allow comparison between conditions or interventions
- Do not focus on area of interest
- May not be responsive
Disease Specific Measures
E.g. The Asthma Quality of Life Questionnaire, Arthritis Impact Measurement Scale, Inflammatory Bowel Disease Questionnaire
