lecture 20: palliative care Flashcards
what is palliative care
approach to care that aims to improve quality of life of person’s and their families facing problems associated w life-limiting
palliative care is provided at the same time as curative care, maximizing quality of life throughout the course of disease
when does palliative come into play
when all interventions have been tried
words to avoid in palliative
- he’s palliative / she was made palliative
- are they palliative now?
- there’s nothing more we can do
is “being palliative” a diagnosis
no!
preferred words for palliative pts
- he has palliative care needs
- we are now using a palliative approach to their care
- goals are symptom-directed
6 components of a good death
- accepted
- good sympt control
- planned
- adequate support/resources
- appropriate setting and site
- in keeping w pt wishes
goals of care for palliative pts
- guide the convo
- what is ur understanding w where ur illness it @
- how much info would you like shared
- if your health worsens what are your most important goals
- what are ur biggest fears and worries w ur health
- act on the convo
- etc…
how is SDM determined
person who is/are highest on this hierarchy
- attorney for personal care
- spouse or partner
2 screening and assessment tools for palliative
- edmonton sympt assessment sys
- palliative performance scale
if no SDM is identified who acts as the SDM
the public guardian and trustee (treatment decisions unit)
what can we do at EOL
- make family and treating team aware of changes in final stages
- treating goal is to minimize discomfort
- anticipate and identify pt and family needs
4 aspects of dying
- social (distancing; withdrawal)
- emotional (fluctuations; existing concerns)
- spiritual (suffering; existential concerns)
- cultural (rituals; ceremonies; information sharing)
what are the sympt prevalence in final days
dyspnea:
secretions:
delirium:
families who would be grateful for support and guidance:
dyspnea: 80%+
secretions: as high as 92%
delirium: 80%+
families who would be grateful for support and guidance: 100%
signs of death
- urine output decreases and may become tea-coloured
- decreased awareness, insight and perception
- HR increased irregular and thready
- sleeping increases
- eating or drinking sto[
- eyes might b slightly open
- oral and ocular mucosal dryness
- breathing shallow, apnea, terminal secretions
- change in skin temp and colour
- restlessness and agitation
- incontinence of urine and stool may occur
visceral pain examples
cramping, twisting, sore, bloating, aching, throbbing