Health Information

Question 1

what is data

Answer 1

raw facts and observations

Question 2

what is information

Answer 2

data processed to be meaningful, or interpreted and communicated/understood by the recipient

Question 3

what is GDPR

Answer 3

general data protection regulation
EU framework to regulate data collection
people must give unambiguous consent to processing of personal info

Question 4

what is routine data

Answer 4

already exists, collected through on-going data collection systems
not collected specifically to answer any particular question

Question 5

what is demographic data

Answer 5

conducted every 10 years, ONS population estimates
NHS administrative data

Question 6

what is health event data

Answer 6

birth and death registrations - required by law

Question 7

what are uses of mortality data

Answer 7

analyses by age sex marital status occupation
hypothesis generation and testing
surveillance of public health

Question 8

what are strengths of registration data

Answer 8

allows calculation of annual population estimates between census points
calculate life expectancy
very high capture rate

Question 9

what is self-reported health

Answer 9

on going surveys
general lifestyle survey e.g

Question 10

what is the GLS

Answer 10

general lifestyle survey
since 1971
monitors smoking prevalence, info on housing, families, pensions, health, income, drinking

Question 11

what info does the hospital episode statistics (HES) have

Answer 11

all admissions, out-patient and A&E attendances at NHS hospitals

Question 12

what is CPRD

Answer 12

clinical practice research datalink
provides anonymised primary care records for public health research
longitudinal follow up

Question 13

what do registers contribute to

Answer 13

medical knowledge and improving healthcare and reduction in disease risk in the UK

Question 14

what is am advantage of registers

Answer 14

detailed, longitudinal info, patient identifiers - can link datasets

Question 15

what is a disadvantage of registers

Answer 15

require substantial resources (financial and staff) - confidentiality, completeness and accuracy

Question 16

what are the uses of registers

Answer 16

PATIENT CARE - monitoring high risk groups, managing demands, auditing treatment
PUBLIC HEALTH - planning provisions
RESEARCH - hypothesis testing

Question 17

what is the northern region young persons malignant disease registry (NRYPMDR)

Answer 17

all cases of cancer diagnosed since 1968 in north in ppl under 25
diagnosis, follow up, birth certificate info

Question 18

what are new sources of data

Answer 18

• UK BIOBANK - 500,000 volunteers , longitudinal
• electronic health records
• social media/apps

Question 19

what are advantages of routine data

Answer 19

useful for generating hypotheses
easily accessible
regularly updated
data on large number of individuals
provide valid information

Question 20

what are disadvantages of routine data

Answer 20

temptation to use them regardless of completeness, accuracy, relevance and timeliness
inflexible
differing age breakdowns and geographical boundaries

Question 21

how should a questionnaire be designed

Answer 21

is it reliable and valid?
clear and simple language
designed to faciliate recall
include overlapping questions as a check
closed/open-ended questions

Question 22

what should you do first when designing a questionnaire

Answer 22

pilot it

Question 23

what is the FAIR principle for data storage consideration

Answer 23

findable accessible interoperable re-useable