Chronic Illnesses Flashcards
What is the illness narrative?
Story-telling and accounting practices that occur in face of illness to make sense of what has happened and give diagnosis and reasons for it
What is illness work?
Bio: dealing with physical symptoms and their impact (meds, body changes, care)
What is everyday life work?
Social: how they carry out ADLs (housework, getting dressed)
What is emotional work?
Psycho: protect others and change friendships (happy, downplay pain, maintain normal activities)
What is identity work?
Psycho: how you think others see you (illness defines your identity, loss of self)
What is biographical work?
Psycho: loss of self/remaking self of biography lost (disruption of assumptions and behaviours that were taken for granted, disruption in explanatory systems-rethink biography, response to disruption by use of resources)
Define stigma
Negatively defined condition, attribute or behaviour conferring ‘deviant’ status
What are the two types of stigma and what can they lead to?
Discreditable: not obvious but don’t want anyone to find out
Discredited: obvious and well-known
Enacted: experience prejudice, discrimination or disadvantage
Felt: fear of enacted stigma and feeling of shame so selectively conceal it
What is narrative reconstruction?
Process by which shattered self is reconstructed in ways that explain appearance of illness so repair breaks between body and self and world by interpreting biography
What interventions are helping improve patient self management?
Telehealth, online, expert patient program-give skills to manage own condition
What is the difference between the social and medical models of disability?
Social is that the problem is due to a poorly adapted environment and society as values skills that you lack
Medical is anything that deviates from the norm
Define chronic illness
Wide range of incurable long term conditions with profound influence on sufferers
