12. Coping with illness and disability Flashcards

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1
Q

What is health?

A
  • State of complete physical, mental and social well-being

* Not merely an absence of disease or infirmity

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2
Q

What proportion of people have a chronic illness in developed countries?

A

1/3

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3
Q

What are the 3 main consequences of disease and their causal links, that the WHO classification describes?

A
  • Impairment - refers to a problem with a structure or organ of the body
  • Disability - functional limitation with regard to a particular activity
  • Handicap - interaction of the individual with the environment; usually a disadvantage as a result of impairment and disability
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4
Q

Is there a correlation between disability + handicap, and impairment + disability, and what does this suggest?

A
  • High correlation between disability + handicap
  • Low correlation between impairment + disability
  • Suggests that something in addition to impairment (structural problem) influences disability (functional limitations)
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5
Q

How high is the human capacity for overcoming serious health problems (resilience)?

A

Very very high (apart from a minority who suffer from severe psychological problems)

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6
Q

What 3 parts is the coping process made up of and what 3 factors influence this (in the crisis theory)?

A

Factors
• Illness related
• Background and personal
• Physical and social environmental

Coping

1) Coping appraisal
2) Adaptive tasks
3) Coping skills

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7
Q

What are the 2 responses to a crisis?

A
  • Adaptive - leads to personal growth and adjustment to illness
  • Maladaptive - leads to poor adjustment (psychological problems, low functioning etc.)
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8
Q

What illness related factors can influence the coping process?

A
  • Unexpected - harder to come to terms with
  • Cause and prognosis - guilt
  • Disability - level of it
  • Stigma
  • Prior experience
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9
Q

What background and personal factors can influence the coping process?

A

• Age of onset
• Gender
• Socio-economic background
- lower background makes it harder
• Occupation - if it requires good health
• Pre-existing illness beliefs e.g. cancer = death sentence
• Personality

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10
Q

What big 5 personality traits have been linked to health outcomes?

A
  • Openness - no clear link
  • Conscientiousness - +2 years to life expectancy
  • Extraversion - lower rates of CHD, protective respiratory disease
  • Agreeableness - hostility associated with CHD
  • Neuroticism - higher use of alcohol and smoking, but higher symptom reporting (hyper-vigilant)
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11
Q

How does life satisfaction change after becoming disabled, and what personality trait affects this?

A

• Significantly negative impact on life satisfaction
• May be small improvement years on
• Life satisfaction is significantly moderated by agreeableness
• Agreeable people:
- tend to have good social support and better quality of friendships
- more likely to follow self-care instructions
- positive and active coping strategies

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12
Q

What physical and social environmental factors influence the coping process?

A
  • Hospitalisation - negative effect
  • Accommodation and physical aids
  • Societal attitudes
  • Social support and social role
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13
Q

What is an illness belief?

A

A patient’s own implicit, common sense beliefs about their illness

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14
Q

What 5 things are asked in an illness perception questionnaire?

A
  • Identity - symptoms?
  • Cause - e.g. pollution
  • Timeline - likely to be acute or chronic?
  • Consequences - expected effects
  • Curability/control - expectations about recovery or control
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15
Q

What did a study where MI patient’s drew their hearts show?

A
  • Patients who drew damage to their heart perceived that their heart had recovered less after 3 months, that it would last longer and that they had less control
  • Extent of damage drawn was correlated with a slower return to work
  • Peak troponin-t was not related to 3-month outcomes or return to work

Study concluded that drawings of damage predict better recovery than medical variables

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16
Q

What are the 2 types of adaptive tasks?

A

1) Tasks related to illness or treatment
• coping with symptoms
• adjusting to hospital environment and medical procedures

2) Tasks related to general psychosocial functioning
• controlling negative feelings and retaining a positive outlook
• maintaining a satisfactory self-image
• preserving relationships

17
Q

What are the 2 types of coping skills?

A

1) Problem-focused coping - efforts directed at changing the environment or changing own actions or attitudes
• seeking relevant information
• learning specific procedures

2) Emotion-focused coping - efforts designed to manage the stress-related emotional responses in order to maintain own morale
• seeking reassurance and emotional support
• meditation and distraction

18
Q

How helpful are emotion-focused coping strategies and what can be done about this?

A
  • Associated with poorer adjustment and greater levels of depression
  • May be due to avoidance
  • However, those who are more distressed may need this (circular reasoning)
  • Optimal coping strategy depends on individual’s preferred coping style and situation
  • Flexibility is the most beneficial
19
Q

Why is patient distress a bad thing?

A
  • Related to longer-term psychological morbidity and poorer health outcomes
  • Greater chance of patients not complying => poorer outcomes
20
Q

Why is medical treatment stressful and how can we use this information to our benefit?

A
  • Stress = perceived discrepancy between demands of the situation and the coping resources available
  • Medical procedures => high perception of threat => coping resources perceived to be low
  • Preparing patients with information can make the experience less stressful
  • Studies have shown informing on post-operative pain has decreased post-operative hospital stay
21
Q

What is procedural and sensory information, and which type is likely to reduce distress during a procedure?

A
  • Procedural - information about the procedure to be undertaken
  • Sensory - information about the sensations that may be experienced

Sensory info is more likely to reduce distress (but a combination is even better = dual process hypothesis)

22
Q

Is it better to give general or specific information to a patient before a procedure?

A

Better to inform them with as much specificity as they want, in order to cause less distress

23
Q

How does control affect distress during medical procedures and give examples of how this has been considered?

A
  • Increased control = less distress
  • e.g. buzzer for patient to halt an MRI procedure
  • e.g. choice to watch the procedure during an angioplasty
24
Q

What is the most effective coping strategy for younger children?

A

Distraction

modelling interventions can be helpful e.g. Film of “Jack has an operation”

25
Q

What is the “tell, show, do” combined approach to preparing a child for a procedure?

A

1) Tell - use simple language to tell the child what will happen (avoiding negative language)
2) Show - demonstrate the procedure using an inanimate object or a member of staff
3) Do - procedure does not begin until the child understands what will be done

26
Q

Does the presence of a parent in treatment help?

A
  • Mixed findings
  • Children’s distress during a routine immunisation was correlated with distress shown by parents, but not to parents’ subjective anxiety
27
Q

What affect does a mother doing the following affect pain in children (girls and boys):
• pain promoting (empathy etc.)
• pain reducing (distraction etc.)
• control (no training)

A
  • Pain promoting increased pain and pain reducing decreased pain below the control in girls
  • No significant effect in boys
28
Q

How should you act differently in a consultation with adolescents?

A
  • Be aware of embarrassment when talking about sensitive health concerns
  • Respond in a non-judgmental way
  • Reassure patient about confidentiality
  • May be helpful to ask parents to allow adolescent to have part of the consultation alone