WEEK SIX Flashcards
Who is a carer?
Carers provide unpaid ongoing care and support to family members and friends who have disability mental illness chronic condition terminal illness an alcohol or other drug issue or who are frail aged.
Caring may consist of?
- emotional support
- providing meals/shopping
- managing finances/administration
- decision making
- assisting with daily activities/transport
- personal and medical care
Questions to consider about culturally appropriate end of life care ?
What are the cancer trends worldwide?
What are the myths associated with cancer?
What are aims of Cancer Prevention?
When is cancer screening recommended?
What are the major issues experienced with end-of-life care by the health team?
What culturally supportive resources are there for individuals for cancer support?
What is the trajectory of dying?
What are the major issues experienced with end-of-life care by patients and carers and family members?
What do we do to break taboos about death?
What are the general principles of support during grief and bereavement?
What are the cancer trends worldwide?
Highest cancer rates: Denmark, France, then Australia Ageing population Attributed to: Western lifestyle Trends: cancer increase by 75% over next two decades Largest cause of mortality
What are the aims of cancer prevention?
Quit Smoking/ Good nutrition/ Physical Activity
Balance between intake and expenditure of energy
Lowering Alcohol consumption
Skin Protection
Take part in early detection programs
Vaccination against HPV
When is cancer screening recommended?
Bowel cancer 50 years 2 yearly
Breast cancer 50 – 74 years 2 yearly
Cervical cancer 50 – 74 years 2 yearly
What culturally supportive resources are available for cancer support?
Meaning shown in Aboriginal cancer stories Regular check-ups needed Found information on the internet Family afraid See a financial counsellor Smoking ceremony allowed Importance of participation Importance of story telling Importance of artwork and symbols
Define end of life?
“That part of life where a person is living with, and impaired by, an eventually fatal condition, even if the prognosis is ambiguous or unknown”
What are the major issues experienced with end-of-life care by the health team?
- Enhanced Primary Care Medicare items underutilised
- Unwillingness to provide homecare and after hours visits
- Access to sufficient numbers of professionals
- Patients don’t take medications
- Delivering of News
- Lack of time, remuneration, training, knowledge, resources
- Lack of experience in palliative
- Enhanced Primary Care Medicare items underutilised
What do we do to break taboos about death?
- Talk about death and dying
- “End of life care” can provide a meaningful response to dying
- A “Good death” is not guaranteed, but good care can be
- Improve public awareness of death and dying issues
- Make end of life care everyone’s business
A healthy view of dieing
Talk with your patients
Death is a personal journey
Different approaches to death and spiritual matters
Facilitate the identifying the wishes of a dying person
Facilitate appropriate support
Facilitate professionals, family or carers to meet individual’s needs
Utilise resources for family members
What are the general principles of support during grief and bereavement?
Just be there
Bereaved person sets the tone
Be comfortable with silence
Don’t take expressions of anger personally
Be aware of cultural diversity and cultural needs
Provide reassurance, a gentle touch and listen
Recognise your own feelings.
Be aware of the future support
Recognise that at times we cannot make it better
Resources for cancer patients
Support programs Palliative care information/events Funding for cancer research Prevention and education programs Publications, CDs, and other resources such as non-government charitable organisation Accommodation for country patients Library services Free wig service Prevention and education programs Publications, CDs, and other resources Education grants
Advance care planning
“The process of preparing for likely scenarios near the end of life that usually includes assessment of, and discussion about, a person’s understanding of their medical condition and prognosis, values, preferences and personal and family resources”
Advance health directive
A set of documents containing instructions that consent to, or refuse, specified medical treatments and that articulate care and lifestyle preferences in anticipating future events or scenarios. They become effective in situations where the person is no longer able to make decisions.
