Transition of care Flashcards
What are some differences in adult and paediatric care?
Paediatric: family focused, MDT, parental involvement, shared decision.
Adult: patient focused, investigational, relies on autonomy and independent consumer skills, less support available and less shared decisions
What have adult doctors identified are common shortcomings of transitioned teens?
Self care skills
Knowledge gaps
Adherence to treatment
What are some of the psychosocial comorbidities for children with chronic conditions?
Depression
Social difficulties and isolation
Issues with body image, school, death and future
Increased unemployment
What are the goals of care for an adolescent with a chronic condition?
Optimal medical education
Understanding of the condition
Understanding of personal potential for activity, education, recreation and vocation
Completion of adolescent development
Attainment of self-confidence and self-esteem
What are the goals of transition of care?
To provide health care that is uninterrupted, coordinated, developmentally appropriate and psychologically sound before and throughout the transfer of are to the adult system
When does transition start?
In childhood - encouraging families and patients to be involved and informed
The child should be given increasing responsibility and knowledge as they go through adolescence
What support can community health clinics provide?
Screening and education on sexual health, drug and alcohol addiction
Genetic counselling
Vocational and educational planning
What is the On-Trac system?
It is a transition program based on early, middle and late transition and that proceeds at the teens pace.
It promotes an environment that supports the family and empowers the teen to become interdependent and responsible for their own health care.
The process begins at 10 years and progresses until full transition.
What are the objectives of On-Trac?
Evolving self esteem an identity
Fostering personal autonomy and independence
Continued development in the sexual area
Promoting psychosocial stability
Continued educational, vocational and future financial planning
Health and health lifestyle promoting practices
What two skills are particularly important for navigating the adult health care effectively for the teen?
Communication and negotiation skills
At the final transition day, is there anything particularly helpful?
A formal acknowledgement of “graduation” (certificate)
Transition letter given to teen - explaining the location of the new facility, the staff and what to expect.
