The impact of long term conditions Flashcards
What is person centred care?
Only patient in position to make decision
More access to info, self-management programs etc
What are the 5 principles of patient centred healthcare?
Respect Choice and empowerment Patient involvement in health policy Access and support Information
(Royal College of Paediatrics And I)
Mary, a 75yo lady has not been at the GP for years. Give three reasons why this could be?
Linked to GP retirement
May have been well
May have been worried about a problem being found
Define illness.
What people experience when they are unwell, how they interpret or define theses symptoms and what actions they take in response
Define disability as defined in the Disability and Discrimination Act.
“One with physical, sensory or mental impairment which has substantial, adverse and long-term (>12m) effect on ‘normal’ day-to-day activities”
When was the Disability and Discrimination Act made?
1995
When was the Disability and Discrimination Act updated and what does it describe disability as?
2010
Disability = protected characteristic
Define incidence.
Number of NEW cases
What does incidence tell you about?
Trends in causation and aetiology
What is incidence statistics useful for?
Planning
Define prevalence.
The number of people in a population with the disease at a certain time
What is prevalence statistics useful for?
Accessing current workload
What are long term conditions and provide 2 examples.
Persistent diseases that don’t lead to early death e.g IHD, OA
What affects do long term conditions have?
Constraints on family life
Failure to re-establish functional capacity to work
Unremitting physical discomfort
In what groups are long-term conditions more prevalent in?
Elderly and deprived groups
What percentage of those registered disabled are in employment?
33.3%
What percentage of all GP appointments are taken by long-term conditions?
50%
What percentage of in-patient bed days are taken by long-term conditions?
Over 70%
What are the two main concerns with long-term conditions?
Consequences
Establishing cause
What is commonly the aetiology of long-term conditions?
Genetic +/- environmental or NONE
Define vulnerability.
Individual’s capacity to RESIST disease, REPAIR damage and RESTORE physiological homeostasis
Why is there a ‘burden of treatment’ in life-long conditions?
Patients/caregivers have to monitor and manage symptoms at home Complex treatment regimes Many drugs Complex admin Lifestyle modifications
Describe biographical disruption in terms of long-term conditions.
Loss of confidence in social interactions or self-identity
What does a chronically ill patient need to do before being able to adjust to their new “normal”.
Make sense of their situation
Describe two different types of disability and give an example of each.
Visible - paraplegia
Invisible - diabetes
What does coping with stigmatism involve?
Decision whether to disclose in the first place
How can disability affect the individual?
Denial, Self-pity, distress, apathy, isolation from community