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RA 9288 Flashcards

1
Q

RA 9288 name

A

Newborn Screening act of 2004

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2
Q

Newborn Screening (NBS) is a a simple procedure to find out if a baby has a __________ that may lead to mental retardation or even death if left untreated.

A

congenital disorder

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3
Q

Most babies with __________ look “normal” at birth. By doing NBS, metabolic disorders may be
detected even before clinical signs and symptoms are
present. As a result of this, treatment can be given early
to prevent consequences of untreated conditions.

A

metabolic disorders

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4
Q

effect if not screened

Organic Acid Disorders

A
  • developmental delays
  • Breating problems
  • neurologic dammage
  • seizures
  • coma
  • early death
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5
Q

effect if not screened

Endocrine Disorders

A
  • severe mental retardation
  • death
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6
Q

effect if not screened

Fatty Acid Oxidation Disorder

A
  • developmental and physical delays
  • neurologic impairment
  • coma
  • seizure
  • heart and liver enlargement
  • musclel weakness
  • sudden death
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7
Q

effect if not screened

Hemoglobinopathies

A
  • painful crises
  • anemia
  • stroke
  • multi-organ failure
  • Death
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8
Q

effect if not screened

Urea cycle defect

A
  • seizure
  • mental retardation
  • death
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9
Q

effect if not screened

Amino Acid Disorders

A
  • mental retardation
  • coma and death from metabolic crisis
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10
Q

Effect if screened or managed

Organic Acid Disorders

A
  • Alive
  • normal development with episodes of metabolic crisis
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11
Q

Effect if screened or managed

Endocrine Disorders

A
  • alive
  • normal
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11
Q

Effect if screened or managed

Fatty acid oxidation disorder

A
  • alive
  • usually healthy in between episodes of metabolic crisis
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12
Q

Effect if screened or managed

Hemoglobinopathies

A
  • alive
  • reduce painful crises frequency
  • reduce blood transfusion need
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12
Q

Effect if screened or managed

Urea cycle effect

A
  • alive
  • normal intelligence
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13
Q

Effect if screened or managed

Amino Acid Disorders

A
  • Alive
  • normal growth
  • normal intelligence
  • some have learning problems
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14
Q

was integrated as part of the country’s public health delivery system with the enactment of the Republic Act no. 9288

A

Comprehensive Newborn Screening (NBS) Program

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14
Q

acts as the lead agency in
the implementation of the law and collaborates with other
National Government Agencies (NGA) and key stakeholders to
ensure early detection and management of several congenital
metabolic disorders

A

Department of Health (DOH)

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15
Q

Newborn screening program in the Philippines currently
includes screening of six disorders:

A
  1. Congenital hypothyroidism (CH)
  2. Congenital adrenal hyperplasia (CAH)
  3. Phenylketonuria (PKU)
  4. Glucose-6-phosphate dehydrogenase (G6PD) deficiency
  5. Galactosemia (GAL)
  6. Maple syrup urine disease (MSUD)
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16
Q

Administrative Order No. 2018-0025

A

National Policy and Strategic Framework on Expanded Newborn Screening for 2017-2030

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17
Q

Administrative Order No. 2020-0052

A

Revised Guidelines on the Implementation of the Expanded Newborn Screening Program

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18
Q

The expanded screening will include __ more
disorders

A

22

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19
Q

The RA 9288 defines the establishment and accreditation of

A

Newborn Screening Centers (NSC)

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20
Q

six operational NSCs in the country

NIH

A

University of the Philippines Manila

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21
Q

Visayas

A

West Visayas State University, Iloilo City

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22
Q

Mindanao

A

Southern Philippines Medical Center, Davao City

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23
Q

Central Luzon

A

Angeles City, Pampanga

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24
Q

Southern Luzon

A

Tanauan City, Batangas

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25
Q

Northern Luzon

A

Batac City, Ilocos Norte

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26
Q

When is it done?

A

done immediately after 24 hours from birth

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27
Q

How is it done?

A
  • take few drops of blood from baby’s heel
  • blot on special absorbent paper
  • sent to newborn screening center (NSC)
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28
Q

Who will collect the sample?

A
  • physician
  • nurse
  • medical technologist
  • trained midwife
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29
Q

What is Procalmation No. 540

A

Declaring the 1
st Week of October of Each Year as
“National Newborn Screening Wee

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30
Q

When was proclamation no 540 approved?

A

january 20, 2004

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31
Q

Who approved Proclamation no 540?

A

Pres Gloria macapagal-arroyo

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32
Q

how many sections does RA 9228 have?

A

19

33
Q

Who approved RA 9288?

A

Pres Gloria Macapagal Arroyo

34
Q

When was RA 9288 aproved

A

April 7, 2004

35
Q

Section 1

A

Title

36
Q

Section 2

A

Declaration of Policy

37
Q

Declaration of Policy

Every baby born in the philippines should be offered the opportunity to undergo what?

A

Newborn Screening

38
Q

Section 3

A

Objectives

39
Q

Objectives

A
  • ensure access to newborn screening
  • establish sustainable newborn screening in public health
  • ensure awareness of health practitions of the advantages of newborn screening
  • ensure parents recognize responsibilty in promoting their childs health
40
Q

Section 4

A

Definition

41
Q

Section 5

A

Obligation to inform

42
Q

Who are obliged to inform the parents or legal guardian of the newborn of the availability, nature and benefits of newborn
screening

A

Any health practitioner who delivers, or assists in the delivery, of a newborn in the Philippines

43
Q

Who’s responsible for the Appropriate notification and education regarding the obligation to inform the parents about newborn screening?

A

Department of Health

44
Q

Section 6

A

Performance of Newborn Screening

45
Q

When should newborn screenign be performed?

A
  • after 24 hours - 3 days after delivery
46
Q

when will you test the newwborn if it must be placed in intensive care?

A

may be exempted from 3-day requirement but mus be tested by 7 days of age

47
Q

joint responsibility of the ______ and the ___________ or ________ to ensure that newborn screening is performed

A
  • parent(s)
  • practitioner or
    other person delivering the newborn
48
Q

Section 7

A

Refusal to be Tested

49
Q

A parent or legal guardian may refuse testing on the grounds of _________, but shall acknowledge in ______ their understanding that refusal for testing places their newborn at risk for undiagnosed heritable conditions

A
  • religious beliefs
  • writing
50
Q

Section 8

A

Continuing Education, Re-education and
Training Health Personnel

51
Q

The DOH, with the assistance of the NIH and other government agencies, professional societies and nongovernment organizations, shall:

A
  1. Conduct continuring education programs for health personnels
  2. dissiminate information materials to health personnels at least annually
52
Q

Section 9

A

Licensing and accreditation

53
Q

The ___ and the _________ shall require health institutions to provide newborn screening services as a condition for licensure or accreditation

A
  • DOH
  • Philippine Health Insurance Corporation
54
Q

Section 10

A

Lead Agency

55
Q

shall be the lead agency in implementing this
Act.

A

DOH

56
Q

For purposes of achieving the objectives of this Act,
the DOH shall:

A
  1. establish advisory commitee
  2. develop rules within 180 days onf enactment of this act
  3. coordinate with DILG for implementation
  4. Coordinate with NIH for NSC accreditation and preparation of testing protocols and quality assurance programs
57
Q

Section 11

A

Advisory Committee on Newborn Screening

58
Q

To ensure sustained inter-agency collaboration, the Advisory
Committee on Newborn Screening is hereby created and made
an integral part of the

A

Office of the Secretary of the DOH

59
Q

Advisory Committee purpose

A
  • review anually and recommend conditions to be included to disorders
  • review and recommend newborn screening fee
  • review the report of Newborn Screening Reference Center on the quality assurance of NSC
  • recommend corrective measure
60
Q

Members of the advisory commitee

A
  1. Secretary of Health (Chairman)
  2. Executive Director of NIH (Vice-chair)
  3. Underscereetary of the DILG
  4. Executive Director of Council for the Welfare of Children
  5. Director of Newborn Screening Reference Center
  6. 3 representative of Secretary of Health (pediatrician, obstetrician, endocrinologist, family physician, nurse or midwife, public or private sector)
61
Q

How many terms does the 3 representative have?

A

3 years

subject to reappointment of 3 years

62
Q

how many times shall the commitee meet?

A

twice a year

63
Q

Who shall serve as the secretariat of the commitee?

A

NIH

64
Q

Section 12

A

Establishment and Accreditation of
Newborn Screening Centers

65
Q

The DOH shall ensure that Newborn Screening Centers are
________ in order to be accessible to the relevant public

A

strategically located

66
Q

NSCs should provide services that comply with the standards approved by the _________ upon the
recommendation of the _____

A
  • Committee
  • NIH
67
Q

Newborn Screening Center shall have a ______________ performing all tests included in the newborn screening program

A

certified laboratory

68
Q

Newborn Screening Center shall have a __________ for infants found positive for any and all of the heritable conditions;

A

recall/follow up programs

69
Q

Newborn Screening Center shall be supervised and staffed by trained personnel who have
been duly qualified by the ___

A

NIH

70
Q

Newborn Screening Center shall submit to periodic announced or unannounced __________ in order to evaluate and ensure quality Newborn Screening Center performance.

A

inspections
by the Reference Center

71
Q

Section 13

A

Establishment of a Newborn Screening
Reference Center

72
Q

The NIH shall establish a __________
, which shall be responsible for the national testing database and case registries, training, technical assistance and continuing education for laboratory staff in all Newborn Screening Centers.

A

Newborn Screening Reference Center

73
Q

Section 14

A

Quality Assurance

74
Q

The NIH Newborn Screening Reference Center shall be
responsible for:

A
  • drafting good lab practice standards
  • establish external lab proficiency testing and certification program
  • act as principal repository of technical info
  • provide technical assistance to NSCs
75
Q

Section 15

A

Database

76
Q

Who is responsipble for the national database?

A

NIH Newborn Screening Reference Center

77
Q

The national database of what?

A
  • patient tested
  • case registries
78
Q

NIH shal submit reports annually to whom and about what?

A
  • Commitee and DOH
  • Status of and relevant health info from databse
79
Q

NIH shall plan for __________ of newborn screening

A

long-term outcome evaluation

80
Q

Section 16

A

Newborn Screening Fees

81
Q

Newborn screening fees is divided to:

A
  • DOH’s Centers for Health Development (4%)
  • NSCs human resource development and equipment (4%)
  • NIH Newborn Screening Reference Center (4%)
  • NSCs operational expense (the rest)
82
Q

Section 17

A

Repealing Clause

83
Q

Section 18

A

Separability

84
Q

Section 19

A

Effectivity

mt loss (7 decks)

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