Pediatrics Test 2: Child with Special Needs Flashcards
Impact on the family
Make sure they have extra help and utilize a support system Adaptive tasks - ways to deal with stress - counseling - finance, insurance, FMLA - personal health - mental well being as a couple Educating others
What are major concepts in care for a special needs child
Developmental
Family-centered
Normalization
Home care: what children remain in home
Mainstreaming: language applied to school system and daycare. Go to same school as others their age
Early intervention: identify those at risk and have access to systems that can help them
Family stress points
Primarily when they come to milestones
- Diagnosis
- When don’t walk/ talk at the same time
- Suppose to start school
- Hit a developmental wall
- Adolescence
- Future placement
- Reach end of a road
Stages of adaptation to chronic illness
- Shock, disbelief, denial
- regret diagnosis for amount of time, physican shopping, attribute symptoms to minor sickness, delay treatment
- Adjustment
- understand diagnosis, go through blaming, bitterness, guilt, overprotection, gradual move to acceptance
- Reintegration and Acknowledgement
- gradual process and developing realistic expectations. Develop chronic sorrow
How do families move forward
Vary depending on the problem Activites of daily living Promoting normal development Advocating and inclusion Building support systems Planning for realistic futures
Impact on the child
Coping - develops competence and optimism - feels affrent and withdraws - irritable, moody, acts out - complies with treatment and seeks support Hope Self care
Cognitive impairment levels
Mild: 50-70 IQ social skills, self maintenance, manage money, have relationships, can be married
Moderate: 36-46 IQ simple tasks, live in apartment, travel alone in familiar surroundings
Severe: 20-35 IQ daily routine, respetitive, needs watched
Profound: <20 need complete care, nonverbal
Areas for functional strength and weaknesses
Communication Self care Home living Social skills Leisure Health and safety Self direction Functional academics
Areas of care
Education Self care Optimal development Play/ exercise Communication stratigies Discipline Socialization Behavioral stratigies
Hospitalized child with intellectual disability
Mutual participation mode, for planning care
Pre-hospitalization visit
Detailed history
Distraction activities
Explain procedures
Determine child’s preferred communication strategy
Down’s Syndrome Clinical Manifestations
Intelligence Social development Congenital anomalies: have congenital anomalies, hypothyroidism, bipolar Growth Growth differences - separated Sagital suture - oblique para rail - high arch narrow palate - protruding tongue - extra skin at neck - short broad hands and feet - simian crease
Fragile X
Cause of inherited mental retardation
Diagnosed by DNA analysis
Fragile X clinical manifestations
Long narrow face with prominent jaw Large protruding ears Mild to severe cognitive Impairment Speech delay Short attention span May be aggressive
Sensory impairment - hearing
5-10 in 1000 infants have hearing loss
Can be acquired
Hearing impairment levels
Severe to profound
- precludes successful processing of linguistic information through audition
Slight to moderate
- has residual hearing sufficient to enable successful processing of linguistic information through audition