Patient Reported Outcome Measures

Question 1

PROMs

Answer 1

Patients are the assessors;

• Better response than clinicians
• No observer bias
• Increase in public accountability

Better use by clinicans and hospitals
Widespread use in UK, US & Sweden

Question 2

Disease specific PROMs

Answer 2

Applied in patients with specific disease only.
More sensitive to outliers (e.g., EORTC)
Suitable for medical doctors

Question 3

Generic PROMs

Answer 3

Across population and interventions which are generally better tested (e.g. , SF36)
Used by reimbursement specialists
SF36 uses standardized response scales within 4 weeks.

Question 4

MAPR approach

Answer 4

Made by lecturer!
Combination of item response theory (ITR) and valuation approach
Let patients make something, just as PROMs

Question 5

Disease-and symptom specific PROMs

Answer 5

E.g., AUA-index

Question 6

HRQol/Health status

Answer 6

Psychological, physical and social

• Indirect: Self-care, relations, participation
• Direct: Affect, pain, mobility, cognition

Should be continuous scale, otherwise can’t be added up (e.g., SF36 can only be used for raw data)
Must be adjusted per timeframe (QALY never remains the same)