Patient and Public Involvement Flashcards
In the context of PPI, what does patient and public refer to?
Patients, potential patients, carers, people who use health and social care services, organisations that rep people
What does PPI (patient and public involvement) do?
Improve access to health services
Allows for a better informed public
improves quality of healthcare
Allows for better use of health care resources
Improves how health services are measured and evaluated
What are the three main ways to include patients and public in healthcare decision making? (explain/elaborate on each)
1) involve the public = inform them, consult them –> tell them what we want, what we will look at
2) Engage = to partner, to work directly with –> involving them in the study
3) Empower = to place authority for final decision making in the hands of patients or the public –> sharing results in public space so people can decide whether it is good or not
What are the first 3 steps to the engagement cycle?
1) inform the patients and public about services on offer/identify gaps
2) gather feedback on views or experiences of services/troubleshooting ideas
3) Develop a plan that create a tool/protocol using all feedback information
What are the last 3 steps to the engagement cycle?
4) engage stakeholders. Agree any service developments with those who have vested interest in the service and incorporate their opinion and values
5) inform patients and public about the changes
6) Make the changes and empower through active participation in form of dissemination of findings
Through which methods can PPI be conducted?
Reviewing documents
Surveys, questionnaire, interviews
Focus and discussion groups
Workshops and training
Exhibition and road shows
Specialised services (community pharmacist involvement)
What is GRIPP2?
‘Guidance for reporting involvement of patients and the public’
Its a reporting checklist which offers the framework for researchers to ensure that PPI is consistently and accurately reported/published
What are some objectives pf PPI in healthcare?
Improving information about services
Improving access to services
Improving quality of services
Improving monitoring of services
Providing perspectives on the changing need of patients and public
Inc recruitment to clinical trials and other research
Improving information about trials and other research
Providing a critical friend perspective to projects and programmes, such as capital projects or service redesign
Inc transparency in strategic matters
Inc accountability to local communities
In the context of PPI, what does ‘involve’ contribute to and what is the outcome?
Contributes to = surveys, pathway diaries, focus groups
Outcome = Better quality authentic patient centred data
In the context of PPI, what does ‘engage’ contribute to and what is the outcome?
Contribute to = developing health information leaflets, research applications, business case
Outcome = transparent processes, better use of health resources
In the context of PPI, what does ‘empower’ contribute to and what is the outcome?
Contributes to = analysing research data; chairing public forum
Outcome = improved democratisation of health services
What are the desirable skills of patient public in PPI study?
Able to self manage
Organised - keep to timetables and commitments
Basic literacy
Ability to reflect open minded
Like working a group/team
Ability to work within a structure
Desire to learn
ability to challenge
personable
