Lecture 6B

Question 1

What is the difference between a patient reported outcome measure (PROMs) and a patient reported outcome (PROs)?

Answer 1

Patient reported outcomes are reports on their state of health from the patient the self taken at face value without interpretation by anyone else

Patient reported outcome measures are the tools used to measure PROs and turn subjective experience into a measurement

Question 2

What is quality of life (QoL) vs health related quality of life (HRQoL)

Answer 2

Quality of life is a multi dimensional concept that includes physical, mental, emotional and social functioning while HRQoL refers to impacts of disease and treatment processes on these

Question 3

What type of PROMs are there?

Answer 3

Generic for use in any patient population, disease specific for a particular condition, unidimensional focussed on symptoms or domains and multidimensional related to quality of life

See lecture for examples

Question 4

What are PROMs important?

Answer 4

Patients and clinicians may have different priorities and perspectives.

Some people may view quality of life over quantity of life or vice versa

Often disconnect between what doctor thinks and what patient is feeling

Question 5

What are PROMs selection criteria?

Answer 5

Appropriateness

Acceptability to patients

Feasibility

Precision

Reliability

Validity