KW seminar: Quality of life Flashcards
Cancer has a big effect on quality of life. What are general (long-term) symptoms that can occur due to cancer?
Changed body image, fatigue and sleep problems, cognitive problems, pain, sexuality.
Cancer has a big effect on quality of life. What are head and neck cancer-specific (long-term) symptoms that can occur due to cancer?
Problems with eating, social eating, speech problems, shoulder problems etc.
What is the definition of health-related quality of life?
It refers to a patient’s subjective perception of the effect on their disease and treatment on physical, psychological and social aspects of life. (But can also be defined as patient’s reported psycical, mental and social functioning).
What is the definition of health (according to the WHO)?
Health is a state of complete physical, mental and social well-being and not merely the absence of disease.
Just read, because I think you can think of these symptoms yourself
Ok
Just read, because I think you can think of these symptoms yourself
Ok
Patient reported outcome measures (PROMs) are questionnaires patients complete on their health and quality of life. What four categories are there?
Generic, disease-specific, domain-specific and symptom-specific
What is an example of a generic PROM and for what patients are they used?
EQ-5D, used in cancer and diabetes patients.
What is an example of a disease-specific PROM and for what patients are they used?
EORTC QLQ-C30, developed specifically for cancer patients.
What is an example of a domain-specific PROM and for what patients are they used?
EORTC QLQ-H&N35, measures symptoms for a specific group of cancer.
What is an example of a symptom-specific PROM and for what patients are they used?
Hospital Anxiety and Depression scale (HADS), used to measure specific symptoms.
EQ-5D is a generic PROM designed for assessing quality of life for e.g. cancer and diabetes patients. Think of and name categories that these questions are based on.
Mobility, self-care, usual activities, pain/discomfort, anxiety/depression.
EORTC QLQ-C30 is a disease specific PROM developed specifically for cancer patients. Think of questions that belong in this PROM.
Questions that have got to do with the general health and general symptoms cancer patients may experience.
Why is it important that we measure health-related quality of life in cancer (4 reasons)?
- To increase symptom awareness
- To improve communication
- To improve symptom management and HRQOL
- To identify patients at risk for mortality and thus to improve survival
Do you think health-related quality of life is associated with survival?
Yes, a high(er) physical functioning score correlates with a better survival.
When should we measure health-related quality of life?
Before, during, after and at long-term follow-up (so during all phases of disease (diagnosis, treatment and follow-up))
What is supportive care?
The provision of the necessary services for those living with or affected by cancer to meet their physical, emotional, social, psychological, informational, spiritual and practical needs during the diagnostic, treatment , and follow-up phases, encompassing issues of survivolship, palliative care and bereavement.
What is selfmanagement?
Those tasks that individuals undertake to deal with the medical, role, and emotional management of their health conditions.
What is eHealth?
Information and communications technology, especially the internet, to improve or enable health care.
There are four intensities of intensive care. What are these?
- Screening for supportive care needs and the provision of relevant information
- Low-intensive care -> self-help interventions
- Moderate-intensive care -> nurse-led interventions
- High-intensive care
What is low-intensive care?
Self-help interventions (many patients)
What is moderate-intensive care?
Nurse-led interventions
Level 1: Screening and monitoring
- For who?
- For what?
- Example?
- For who? Everyone
- For what? Screening and monitoring of HRQOL and symptoms (also providing information)
- Example? OncoQuest (designed for cancer patients for assesing their HRQOL).
Level 2: Low-intensive supportive care
- For who?
- For what?
- Example?
- For who? those with low unmet needs
- For what: providing information, education and self-management interventions
- Example: in Tune without Cords
Level 3: Moderate-intensive supportive care
- For who?
- For what?
- Example?
- Who? Those with unmet needs for with low-intensive care is not sufficient
- What? Interventions provided by a nurse or group interventions
- Example: speech therapy in groups
Level 4: Intensive supportive care
- For who?
- For what?
- Example?
- Who? Those with unmet needs for which moderate-intensive supportive care is not sufficient
- What? intensive idividual care provided by a caregiver.
- Example: individual treatment by a speech therapist.
What is stepped care principle? And why do we have this principle?
Here, low-intensive treatment is offered to the patient. In case this treatment is not sufficient more intensive treatment is provided to the patient. It is expected that this is more effective and less costly.
