Chronic Illness Experience Flashcards
______ ____ refers to a condition which is long term
Chronic illness
List a few examples of chronic diseases that could last a life time
Diabetes
Multiple sclerosis
End stage kidney disease
Chronic illnesses are long term, how does this have an impact on a patients life
Physical and social restrictions
Treatments
What do we consider a contemporary phenomenon
Chronic illness
Chronic illness is found to be _____ amongst many age groups
Prevalent
Abnormalities in the functioning body is known as
Impairment
Give an example of impairment
Diabetes
Multiple sclerosis
Heart disease
- any medical condition/malfunction
What is a disability
Inability to perform and activity in a “normal” manner for a human being
Give an example of a disability
Needing support when walking
Intellectual disabilities like down syndrome
What is handicap?
A social disadvantage which results from the inability to fulfil a role that is normal. It’s a circumstance one may have that makes progress and success difficult. Unable to accomplish something one may want, that most others could accomplish.
Example of handicap
Disadvantage due to inability to have full time employment
Chronic illness means a patient is most likely going to be at a ___ and be ___
Disadvantage / deprived
Disadvantages and deprivation of chronic illness
Difficulties managing symptoms
Difficulties managing treatment (meds, diet, lifestyle changes)
Adjusting to their new life/realities
Psychological distress and dependence
The change in lifestyle and social isolation
A 22-year-old man had an accident and had a spinal cord injury. He cannot walk properly and he has to use a wheel-chair when he has to go out. Due to his experience he has difficulties to find a job and attain higher education abroad.
Where can you see impairment, disability and handicapped in the following example?
Impairment: spinal cord injury leading to malfunction in legs
Disability: cannot walk properly, must use wheel-chair.
Handicap: he is disadvantaged due to his circumstance and therefore, can’t find a job or attain higher education because he is handicapped
IMP: PSYCHOSOCIAL (SOCIAL LIFE)
What 3 consequences due to psychosocial changes for chronic patients?
Uncertainty
Family relations
Biographical disruption
Uncertainty is one of the consequences/psychosocial changes of chronic illness and has 3 forms, what are they?
uncertainty about the cause (why me, why now)
uncertainty about functionality (will be able to do things now)
Uncertainty related to feelings about prognosis/medical condition (what’s gonna happen to me)
When are feelings of uncertainty stronger
When a patient has more social obligations to fill
Family relations undergo psychosocial changes due to chronic illness and has 4 forms, what are they?
Reallocation of tasks (house work/ work work where the healthy partner has to compensate for the loss of work hours and salary)
Chronic patients may feel they are a burden to their families (a patient with end stage kidney disease feels like a burden and refuses any assistance)
Chronic patients may withdraw from family life (pay not participate in family gatherings)
Marital breakdown is common (the healthy space breaks up with patient or vice versa)