Adults with Intellectual & Developmental Disabilities Flashcards

1
Q

why are people w IDD living longer (3)

A
  1. improved medical care
  2. US public policy: education, setting of care/de-institutionalization
  3. advocacy: self & family/friends
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2
Q

what is the significance of how people w IDD age

A

premature aging
- accelerated problems at a higher rate (ie issues w vision, osteoporosis)

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3
Q

what is the significance of people w IDD experiencing health and healthcare disparities

A

leads to poor health outcomes

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4
Q

what are 5 systems that have health issues in IDD

A
  1. MSK
  2. metabolic
  3. cardiovascular & pulm
  4. GI and GU
  5. sensory (vision, hearing)
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5
Q

what are 5 health issues experienced in IDD

A
  1. obesity
  2. dental disease
  3. falls
  4. mental illness
  5. fatigue, poor sleep
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6
Q

what are 4 various MSK conditions that can develop over time in IDD

A
  1. hip dislocation
  2. patella alta
  3. spondylolysis
  4. cervical spine stenosis
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7
Q

what should be considered as contributing to MSK conditions that develop over time in IDD

A

impact of chronic abnormal joint biomechanics

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8
Q

what are 3 common MSK/ortho health issues in IDD

A

pain
dec bone mineral density
osteoporosis (inc vs gen pop)

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9
Q

what is the significance of MSK pain in IDD

A

often underreported/unrecognized
- IDD difficulty interpreting and communicating the pain
- dec access to providers who would recognize

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10
Q

what is a challenge with MSK health issues in IDD

A

proper screening/dx and treatment
- difficulty to get access
- difficult to lie still to be scanned

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11
Q

what screens for MSK/ortho health issues like osteoporosis in IDD

A

dual emission XR absoptiometry scan

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12
Q

what are 4 metabolic health issues in IDD

A
  1. metabolic syndrome - early onset
  2. DM
  3. coronary artery dz
  4. hypercholesteremia
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13
Q

what is the significance of metabolic health issues in IDD

A

can lead to death

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14
Q

what is the incidence of obesity in IDD

A

inc rates
- esp if + down syndrome, women + IDD

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15
Q

etiology of obesity in IDD

A

multifactorial:
- modifiable risk factors
- non modifiable (ie meds, mobility limitations)
- reliance on caregivers to move

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16
Q

what is the significance of obesity in IDD (2)

A

impacts development of metabolic syndrome

neg social stigma

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17
Q

what type of intervention is needed for obesity in IDD

A

multifactorial to treat multifactorial etiology

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18
Q

what are 3 cardiopulm health issues in IDD

A
  1. cardiovascular dz
  2. COPD
  3. other lung conditions (pneumonia & influenza)
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19
Q

what is the significance of cardiopulm health issues in IDD

A

significantly higher death rates compared to gen pop

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20
Q

what impacts the death rate d/t COPD or other lung conditions in IDD

A

33% in severe ID
50% in IDD institutions

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21
Q

what are 3 GI/GU health issues in IDD

A
  1. new or pre-existing incontinence (urinary, bowel, or both)
  2. inc mortality rate d/t bowel obstruction, perforated ulcers
  3. no regular cancer screening for colon, breast, prostate
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22
Q

what is the major issue with GI/GU health issues in IDD

A

undiagnosed, therefore untreated

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23
Q

what are 3 factors that impact GI/GU health issues in IDD

A

communication
cognition
interpretation of nociception

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24
Q

what sensory health issues are very prevalent in IDD (2 and related)

A

vision impairments more common vs gen pop
eye dz

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25
what is the most common cause of vision impairments in IDD
uncorrected refractive errors (ie astigmatism, myopia, hyperopia)
26
what 2 vision impairments are there a high occurrence of in IDD
nystagmus strabismus
27
what 3 eye diseases are common in IDD
cataracts conjunctivitis inflammatory conditions
28
what is the incidence of hearing issues in IDD
30% fail when screened
29
what organization provides most data to give insight into health issues in IDD
special olympics healthy athletes
30
what are 6 oral health issues in IDD
1. OA of TMJ 2. xerostomia (dry mouth) 3. dental caries 4. periodontal dz 5. impaired chewing - esp w tooth loss 6. tooth loss
31
what is the significance of dental caries in IDD
often underdiagnosed, or untreated or treated by extraction instead of fillings/root canals
32
what is the incidence of tooth loss in IDD
>65yo w IDD, more likely to have lost all natural teeth vs gen pop
33
what is the significance of dental disease in IDD
directly impacts individuals overall systemic health and communication, taste, smell, smile, facial expressions
34
what is the incidence of falls and the significance
higher rate vs gen pop higher rate of falls at younger age significance: 2x inc risk of injury vs gen pop
35
what mental health issues are common in IDD
anxiety and depression - and many others
36
what is the challenges (2) with mental health issues in iDD
1. lack of provider confidence in dx 2. dec provider knowledge of presentation of mental illness in IDD
37
when is it important to consider mental health issue influences in our practice of treating someone w IDD
if seeing changes in behavior we don't understand - screen mental health
38
what are 2 impacts of chronic fatigue in IDD
1. affects level of exertion 2. diminished ms mass and force production associated w chronic condition
39
what is a possible cause of chronic fatigue in IDD
developmental issues growing up that were exacerbated leading to chronic fatuge
40
what are 2 impacts of poor sleep in IDD
pain gastroesophageal refulx
41
life expectancy in IDD and what is suspected reasoning
20yrs less than gen pop - in US avg 75-80yr -> 55-60 in this pop d/t chronic issues, access to healthcare
42
describe the utilization of healthcare services in IDD
individuals w IDD don't receive health services that diverse range of health conditions require
43
what are 3 barriers to health care services in IDD
1. nature of health care system 2. common characteristics among individuals w ID/IDD 3. characteristics and skills of providers
44
what are 5 barriers d/t the nature of the health care system and IDD
1. inadequate medical insurance coverage 2. lack of accessible treatment facilities 3. poor coordination w/i healthcare system and b/w providers 4. poor continuity of care for individuals w IDD - rarely see same provider 5. poor coverage for and limitations in use of speciality services
45
what is often a healthcare provider when people w IDD become adults
hard fro pts to transition from pedi to adult providers since there are less adult providers
46
describe the specifics that lead to poor coverage and limitations in specialty services for IDD (2)
1. inadequate # of specialized providers (ie derm, gastroentero, immunol) 2. insufficient reimbursement and inapprop limitations by payers for certain services
47
how is there a lack of accessibility to treatment in IDD
physical lack of accessibility to facility - lack of transportation also lack of providers willing to work w this pop
48
what are 5 ways that the characteristics of persons w IDD are barriers to health care
1. limited communication skills -> impedes clinician-pt interactions 2. physical and behavioral impairments 3. difficulty adhering to treatment regimens 4. reliance on caregivers to seek care in system w high caregiver turnover 5. inadequate family resources
49
what are 3 provider characteristics that are barriers to healthcare to IDD
1. lack of primary care provider training 2. poor documentation of services 3. provider attitudes
50
how is there a lack of primary care provider training in healthcare of IDD (2)
1. in interacting w individuals w IDD 2. management of common problems in individuals w IDD
51
how is there poor documentation of healthcare services provided to IDD
lack of medical records that accurately document case hx
52
what negative provider attitudes are present w regard to IDD (4)
1. persistent lack of knowledge 2. disbelief in pts w IDD will benefit from treatment 3. doubt pts w IDD willing to take care of selves 4. more difficult to work w and less compliant
53
what are 4 major roles of PTs in treating IDD
1. design & implement safe exercise exercise programs 2. adapt equipment & positioning 3. identify community resources 4. expand service delivery
54
what are 3 goals of PT exercise programs in IDD
fitness vitality pain management
55
what are 4 targets of PT exercise programs in IDD
wt management bone health strength/ms mass cardiovascular fitness
56
who should PT consult w when prescribing adaptive equipment for IDD (2)
community organizations PCPs
57
what are 2 goals of adaptive equipment and positioning in IDD
1. support full participation 2. enhance comfort for sleeping in home
58
what community resources should PT seek out in advocating for IDD (3)
1. community gyms w trainers/equipment accessible 2. consultation w vocational/employer services 3. advocate for accessible rec and outdoor opportunities
59
what are 4 roles of PT in service delivery to IDD
1. facilitate transition of pedi to adult service provision 2. training in working w people w IDD 3. collaborate w other providers 4. access to care
60
what other providers should PT collaborate w in service delivery to IDD (3)
pedi adult neuro
61
what are 5 attributes PT should consider when thinking ab IDD access to care
attitudes at clinic funding physical accessibility transportation community programming
62
what are 5 screening fields of FUNfitness for IDD
flexibility strength balance aerobic education
63
what is the average age of pts w IDD screened in FUNfitness
22.6yo
64
what is the greatest need of people w IDD screened by FUNfitness
education
65
what do coaches of FUNfitness for IDD need
guidance ab fitness
66
what has FUNfitness found ab incidence of health issues in screening IDD
almost all athletes have a limitation in an area of screening - 70% have limitations in 3+ areas of 5
67
Healthy Athletes found that 50% of those screened w IDD found limitations in what 3 fields across all ages
flexibility strength balance
68
what are 4 things which success as an adult w IDD is linked to
1. excellent med care 2. participation in regular fitness activities 3. support systems 4. "accept me for who i am" attitude
69
what are 3 ways PT should address mental health in IDD
1. screen for mental health conditions 2. use relaxation techniques 3. refer for CBT
70
what are 5 modes of communication in IDD
verbal ASL written assistive tech via healthcare proxy
71
what are 4 strategies to utilize when communicating w someone w IDD
1. speak at slightly slower pace 2. be redundant but not repetitive 3. allow extra time for pt response 4. confirm comprehension - teachback method
72
what are 3 ways to modify PT treatments for IDD
1. employ communication strategies 2. consider likely presence of co-morbidities and multisystem involvement 3. break down task into few easy steps