13: CLINICAL DATA REPOSITORIES

Question 1

________________ is a systematically structured and gathered “storehouse” of patient -specific data, which is usually mirrored from a clinical application, or supplemented with data from other systems.

Answer 1

CLINICAL DATA REPOSITORIES

Question 2

A database that collects observations for a specific clinical research study.

Answer 2

Study

Question 3

A database of observations made as a result of direct health care.

Answer 3

Electronic Health Record

Question 4

Observations collected and organized for the purpose of studying or guiding particular outcomes on a defined population. Associated studies are either multiple or long-term and evolving over time.

Answer 4

Registry

Question 5

A repository that adds levels of integration and quality to the primary (research or clinical) data of a single institution, to support flexible queries for multiple uses. Is broader in application than a registry.

Answer 5

Warehouse

Question 6

A library of heterogeneous data sets from more organizations than a warehouse or more sources than a registry. Organized to help users find a particular data set, but not to query for data combined across data sets.

Answer 6

Collection

Question 7

A repository distributed across multiple locations, where each location retains control over access to its own data and is responsible for making the data comparable with the data of other locations.

Answer 7

Federation

Question 8

There are different levels of integration in the CDR depending on the locations, indices, catalogues, semantic translations or equivalences, syntactic structures, and links to external information.

Answer 8

CDR INTEGRATION WITH HIS

Question 9

The structure of clinical data repositories allows data to be extracted along dimensions such as time (by year, month, week, or day), location, or diagnosis among many others.

Answer 9

MULTIPLE VIEWS FOR PATIENT MEDICAL RECORD