Week 9: Clinicians Perspectives and Experiences

Question 1

Look at google doc for Equity video

Question 2

What were the 6 findings in the CADTH article on Genome Wide-Sequencing patient’s perspectives?

Answer 2

1. ending “diagnostic odyessy”
2. permanence and acceptance
3. biomedical consequences
4. parental guilt, fear, and seeking a sense of community
5. Disability support services
6. Incidental findings

Question 3

What is diagnostic odyessey?

Answer 3

the time taken between a patient first developing symptoms of their condition and receiving a correct medical diagnosis

Question 4

What is the finding of “diagnostic odessy” in CADTH genome wide-spread sequencing article?

Answer 4

• Gave closure for now
• allowed them to feel that they were able to have hope for future answers the more people got diagnosed with it

Question 5

What is the finding of “permanence and acceptance” in CADTH genome wide-spread sequencing article?

Answer 5

• once finding out the answer it can positively or negatively change the person for the future
  ex: once they know they cannot beat it, they try to live the best they can

Question 6

What is the finding of “biomedical consequences” in CADTH genome wide-spread sequencing article?

Answer 6

• domino effect after being tested and may require more testing on testing = COSTLY!
• knowing something about one person could help out the rest of the family to be aware or prevent

Question 7

What is the finding of “parental guilt, fear, and seeking sense of community” in CADTH genome wide-spread sequencing article?

Answer 7

• common once receiving diagnosis that parent’s put the blame on themselves
• geneticists have an important role in explaining the testing to show and minimize stigmatizing effects of “its your parents fault”
• gave a sense of relief and open doors to building social ties with other families living with similar conditions and difficulties

Question 8

What is the finding of “disability support - services” in CADTH genome wide-spread sequencing article?

Answer 8

“double edge sword” –> may create more access or may negate access

Question 9

What is the finding of “incidental” in CADTH genome wide-spread sequencing article?

Answer 9

• if something can be done then they want to know but if not then maybe not
• this may change your outlook on life once receiving diagnosis

Question 10

What were 3 recommendations for the CADTH Genome Wide - Sequencing article?

Answer 10

• clinicians and specialists need to be involved early on to make sense of results
• communication with specialists is important when condition is inherited –> especially if KIDS
• genetic diagnosis with limited things you can do = more burden on parents

Question 11

What were the findings on the CADTH Robotic surgery article?

Answer 11

• from perspectives of surgical teams
• teams excited
• work flow problems
• technical and time issues –> very consuming to set up, need more tech knowledge, on demand support
• steep learning curve –> need standard training
• “sensory shift” –> go from tactile to all visual
• needs a whole team training approach and ensuring good group dynamics
• some positive patient outcomes
• not suitable for all procedures
• long term outcome unknown
• patient’s want more info, education, and support before deciding to use this

Question 12

What were the 4 HTA recommendations for Robotic surgery?

Answer 12

• Solicit more patient perspectives
• Plan for additional organizational support
• Ensure adequate training and education
• Plan for technical support

Question 13

Look on google doc for more details on CADTH readings