week 10 Flashcards

1
Q

Learning Objectives

A

Understand definitions of death
Describe types of euthanasia and the controversy surrounding it
Describe theories of how we deal with our own impending death
Understand the concept of death anxiety
Understand end-of-life decisions
Explain why people plan or not and the implications of this
Describe the differences between hospital and palliative care
Understand the grieving process

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2
Q

Definitions and ethical issues

A

Clinical death: Lack of heart beat and respiration

Whole-Brain death is most widely accepted today.

  • Includes eight specific criteria, all of which must be met:
  • No spontaneous responses to any stimuli
  • No spontaneous respiration for at least 1 hour
  • Total lack of responsiveness to even the most painful stimuli
  • No eye movements, blinking, or pupil responsiveness
  • No postural activity, swallowing, yawning, or vocalizing
  • No motor reflexes
  • A flat EEG for at least 10 minutes
  • No change in any of these when tested again 24 hours later

Persistent vegetative state occurs when cortical functioning ceases; the person does not recover.

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3
Q

Thanatology

A

Scientific study of death and dying, including the associated practices and processes

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4
Q

Persistent Vegetative State

A

Severe brain damage and coma but also show signs of a “sleep-wakefulness” cycle without awareness
-Absence of self-awareness, attention, recognition, stimuli, learned responses

Typically irreversible, and Canadian courts will permit nutrition and hydration to be withdrawn when persists for 6 months

Terry Shiavo

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5
Q

Euthanasia

A

Active euthanasia
-Deliberately ending someone’s life through some sort of intervention or action

  • Passive euthanasia
  • -Ending someone’s life by withholding treatment
  • Physician-Assisted Suicide
  • –Provides for people to obtain prescriptions for self-administered lethal doses of medication
  • Netherlands:
  • Patient is of sound mind
  • Patient suffering irremediable and unbearable
  • Second physician agrees
  • Patient aware of all options
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6
Q

Euthanasia

ethical concerns

A

Hippocratic Oath
Do no harm, to benefit the sick
In opposition to euthanasia

Ethical Concerns
Beneficence: People have a duty not to be a burden
Justice: People should not take more than their fair share

Georges and colleagues (2007)
87 Relatives of people who died by euthanasia in the Netherlands because of suffering, loss of dignity, no prospect of recovery
92% of relatives found euthanasia favourable contribution to patient quality of life by preventing/ending suffering

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7
Q

Near Death Experiences

A
  • -OBE
  • -Darkeness
  • -Deceased relatives
  • -Being of light
  • -Judgement/review
  • -Transcendence
  • The impact of NDEs
  • -Has a profound impact on people
  • –People report coping more effectively with death
  • -Increased religiousity/faith

What are NDEs?

  • -Evidence of life after death?
  • -Hallucinations ?
  • -Children have similar NDE –than adults
  • -Many similarities across cultures
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8
Q

Dealing with our own death

Kübler-Ross’s theory

A
Kübler-Ross’s theory 
1Denial
2Anger
3Bargaining
4Depression
5Acceptance

These stages can overlap and be experienced in a different order.

Individual differences are great.

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9
Q

Dealing with our own death

A
A Contextual Theory of Dying
Corr identified four dimensions of tasks that must be faced.
-Bodily needs
-Psychological security
-Interpersonal attachments
-Spiritual energy and hope

Emphasizes the tasks and issues that a dying person must face, and although there may be no right way to die, there are better or worse ways of coping with death

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10
Q

Death Anxiety

A

People’s anxiety or fear of death and dying.
-Terror Management Theory: addresses why people engage in certain behaviors to achieve particular psychological states based on their deeply rooted concerns about mortality.

Death anxiety consists of several components that can be accessed at the public, private and nonconscious levels.

Death anxiety may have a beneficial side.

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11
Q

Death anxiety
young vs older
centre on what, cicerllis model, how to cope

A

Higher for younger adults and middle-aged than older adults

Death anxieties center on annihilation
–Complete loss of existence of self and body

Cicerelli’s transition model
–Those with remaining purposeful goals and a discrepancy between desired and expected life expectancy have more death anxiety

Living life to the fullest is one way to cope with death anxiety.

  • -Koestenbaum proposes exercises to increase one’s death awareness.
  • –An increasingly popular way to reduce anxiety is death education.
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12
Q

Final Scenario

A

End-of-life issues

  • Managing the final aspects of life
  • After-death disposition of the body and how one is memorialized
  • Distribution of assets

Making choices about what people do and do not want done

A crucial aspect of the final scenario is the process of separation from family and friends.
Bringing closure to relationships

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13
Q

Dying to know day

A

August 8th
Annual day of action dedicated to bringing to life conversations and community actions around death, and dying
Launched in 2013 and has seen over 350 events and has sparked thousands of conversations about death and dying
Promote death literacy
Kerrie Noonan – My friend Jude
https://www.youtube.com/watch?v=ouEVusy7sQk

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14
Q

Death literacy

A

Includes knowledge, skills, and ability to take action.

Recognises the role that everyone has in end of life care and death care.

Having knowledge helps us make informed decisions

Being able to act on that
knowledge is empowering.

For example do you know:

  • what an advance care plan is and how it is used?
  • how to access palliative care in your area?
  • about alternatives to traditional cremation/burial in your local area?

Many of us are looking to build our death literacy so we can make informed decisions about our dying, end of life care and death.

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15
Q

What drives people to plan ahead (or not)?

A
Recent hospitalisation
Death of a family member 
Education 
Death anxiety
Belief in physician decision making 
People procrastinate
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16
Q

End-of-life decisions

A

Approximately ½ of Australians die in hospital, and 1/3 in RAC
70% want to die at home, but only 14% do
-hospitals and RAC are their least preferred places to die
$5 billion a year is spent on the last year of life for older people (in a health budget of $100 billion).
–only about $100 million is spent on helping people to die at home

17
Q

few australians over 65 die at home

A

see slide 18

18
Q

what is a good death

A

see slide 19

19
Q

Advance Directives

A

Legally binding medical treatment decisions

  • Living will: A person simply states his or her wishes about life support and other treatments.
  • Durable power of attorney: An individual appoints someone to act as his or her agent for health care decisions

The purpose of both is to make one’s wishes about the use of life support known in the event one is unconscious or otherwise incapable of expressing them.

These can also serve as the basis for Do Not Resuscitate (DNR) medical order which is used when cardiopulmonary resuscitation is needed.

20
Q

Advance Care Plans

A

When preferences are not clear, difficult to move to palliative care, as this often involves withdrawing treatments and can include pain relieving treatment that hastens death.

ACP appoints a substitute decision maker and documents values beliefs and preferences to provide clarity for health professionals who provide treatment and services.

New residents in RAC 4x more likely than other residents to complete a plan if introduced to ACP

But only 5% of residents have documented advance care directives

21
Q

Hospice

A

Hospice is an approach to assisting dying people that emphasises palliative care and death with dignity

Hospice care emphasizes quality of life rather than quantity of life.

The goal is a de-emphasis on the prolongation of death for terminally ill patients.

Both inpatient and outpatient hospices exist.

The role of the staff is to be with patients, not to treat the patient.

22
Q

hospice questions

A

Is the person completely informed about the nature and prognosis of his or her condition?
What options are available at this point in the progress of the person’s disease?
What are the person’s expectations, fears, and hopes?
How well do the people in the person’s social network communicate with each other?
Are family members available to participate actively in terminal care?
Is a high-quality hospice care program available?

Palliative
Designed to control the pain and physical symptoms of those who are dying
Aimed to
Control pain/discomfort
Create intimate and supportive environment
Maintain humanity, dignity, independence
Eligibility typically when have <6 months to live
Postvention Services
Aide to survivors in the year following loved one’s death
Huge savings and benefits
Approx ¼ hospice patients hospitalised compared to approx ½ non-hospice patients
Cost per day in final 60 days 1/3 of non-hospice patients
Live approximately 1 month longer
Better pain management (even with same drugs)
Focus on circle of care
Topics addressed
1. Spiritual matters, 2. Death anxiety

Is hospice covered by insurance?

23
Q

palliative vs hospice

A

palliative care is aimed at anyone who has been diagnosed with a lifethreatining illness

  • maintain qol
  • reduce symptoms
  • cancer px who recieive pal care alongside standard tx can live longer

hospice = aimed at px who have been diagnosed with terminal illness
provides dignified pain free death, i

24
Q

The Grieving Process

A

Bereavement
The state or condition caused by loss through death

Grief
The sorrow, hurt, anger, guilt, confusion, or other feelings that arise after a loss

Mourning
The way we express our grief
–Mourning is heavily influenced by cultural norms.

25
Q

The Grieving Process

A

The Grief Process
A complicated and personal one
Unlike bereavement, over which we have no control, grief is a process that involves choices.
-Acknowledge the reality of the loss
-Work through the emotional turmoil
-Adjust to the environment where the deceased is absent
-Loosen ties to the deceased

Grief is an active coping process.

26
Q

The Grieving Process

A

Risk Factors in Grief

  • Sudden death vs. prolonged death
  • –Anticipatory grief
  • —-People tend to disengage from the dying person.
  • –Strength of attachment makes a difference
  • —-Strong attachment and sudden death causes greater grief.
  • —-Secure attachment results in less depression due to less guilt over unresolved issues.

Two interpersonal risk factors

  • Lack of social support
  • Kinship
27
Q

Normal Grief Reactions

A

Grief work: the psychological side of coming to terms with bereavement.

  • Grief involves coping, affect, change, narrative, and relationship.
  • Displays of grief vary.
  • Physical health may decline while grieving.
  • Anniversary reaction
  • Grief over time
  • -Grief work tends to peak within the first six months.
  • -People can grieve many years after the loss.
28
Q

Coping with Grief

The Four Component Model

A
  1. The context of the loss
  2. Continuation of subjective meaning associated with loss
  3. Changing representations of the loss relations over time
  4. The role of coping and emotion-regulation process
    - – Grief work as rumination hypothesis: extensive grief processing may actually increase distress
29
Q

Coping with Grief

The Dual Process Model (DPM)

A

Considers two broad types of stressors:
Loss-oriented stressors
Restoration-oriented stressors

30
Q

Complicated or Prolonged Grief Disorder

A

DSM controversy
Distinguished by:
- Symptoms of separation distress
—Preoccupation with the deceased to the point that it interferes with everyday functioning

  • Symptoms of traumatic distress
  • –Feeling disbelief about the death
  • –Mistrust, anger, and detachment from others as a result of the death
  • –The experience of physical presence of the deceased
31
Q

Difficult Deaths

A
Death of a young child
Death of an adult child
Death of a sibling
Death of a parent
Death due to suicide
32
Q

Disenfranchised or stifled grief

A

Circumstances of the death

  • Suicide
  • Stigmatized diseases
  • Executions
  • Substance abuse

Expression

  • Strong affective response
  • Stoicism
  • Workplace

Non-traditional relationships

  • Not
  • Extra-marital
  • Ex-spouses
  • Friends
  • Colleagues
  • Companion animals

Particular losses

  • Miscarriage
  • Abortion
  • Suicide
  • Prisoners