Module 3 Flashcards
What are the principles and guidelines for early intervention
Best practice guidelines for EHDI adapted from Christine Yoshinga-Itano
Access to ?
access to ? who have ?
access to ? who have ?
consider ?
consistent ?
families will be
families will have access to ?
timely and coordinated entry into early intervention programs
service coordinators who have specialized knowledge and skills related to working with individuals who are DHH
early intervention providers/ professional qualifications and core knowledge and skills to optimize the child’s development and child/family well being
culture of child and family
monitoring of progress and follow up with additional professionals where appropriate
active participants
other families who have children who are DHH for support, mentorship and guidance
Universal Newborn Hearing Screening (UNHS):
two types of screenings:
OAE
ABR
otoacoustic emissions: small earphone, or probe, is placed in the ear. The probe puts sounds into ear and measures sounds that come back
Auditory Brainstem Response: used with children or others who cannot complete a typical hearing screening and or following a non-pass on OAE
Electrodes connected to computer and record brain wave activity in response to sounds presented through earphones - person completing test interprets results
Most of the time which Newborn hearing screening is performed ?
THEN ?
OAE because easier and anyone can be trained to do it
pass or not pass (refer) result
ABR if OAE not passed
Every state and territory of the US has an established ?
The EHDI program staff are responsible for creating, operating, and continuously improving a system of services which assures that:
-every child born with permanent hearing loss ?
every family of an infant with hearing loss receives ?
effective newborn hearing screening ? are linked with ?
Early Hearing Detection and Intervention program
is identified before 3 months of age and provided with timely appropriate intervention services before 6 months of age
culturally competent family support as desired
tracking and data management systems/ other relevant public health information systems
Florida EDHI:
all newborns who are DHH should have a ?
a medical home is NOT a ? it goes beyond the walls of a ? A medical home refers to the partnership with?
the medical home recognizes the family as a ? and emphasizes ?
medical home
building/ clinical practice / clinical specialists, families and community resources
constant in a child’s life/ partnership between health care professionals and families
Joint Committee on Infant Hearing:
1-3-6
1 month:
3 months: those who do not pass screening should have a ?
- goal is
- should be fit with ?
6 months:
-infants with confirmed hearing loss should receive ?
hearing of all infants should be SCREENED at no later than 1 month of age
comprehensive audiological and medical evaluation before 3 months of age
- diagnosis
- amplification within 1 month of diagnosis
-appropriate intervention at no later than 6 months of age from health care and education professionals who expertise in hearing loss and deafness in infants and children
hearing loss is one of most common?
each year approx. ? born with atypical hearing
hearing loss is even more common in ?
based on data collected by CDC from states and territories for year 2019:
-over ? os US newborns were screened for hearing loss
- almost ? US infants born in 2019 were identified with ?
- since 2005 over ? infants who are DHH in US have been?
Screening programs are typically ? the CDC’s early detection and intervention program estimates ?
congenital conditions
2-3 infants
infants admitted to intensive care units at birth
98%
6,000 / early with a permanent hearing loss
58,000/ identified early
cost-effective / newborn hearing screening saves 200 million dollars in education costs each year
Causes, Risk, Factors and Characteristics:
genes are responsible for approx. ?
approx. 20-30% of babies with genetic hearing loss have a?
50% of children with hearing loss
syndrome (down syndrome, usher syndrome, etc.)
Causes, Risk factors and characteristics continued:
infections during pregnancy in the mother, other environmental causes , and complications after birth are responsible for ?
congenital cytomegalovirus (CMV) infection during pregnancy is a ?
about one in every four children with hearing loss also is born weighing less than ?
the most common developmental disability to co-occur with hearing loss is ? followed by ? and or?
30% of babies with hearing loss
preventable risk factor for hearing loss among children
2,500 grams (about 5 1/2 pounds)
intellectual disability (23%), cerebral palsy (10%), autism spectrum disorder (7%) and or vision impairment (5%)
Economic Cost:
during the 1999-2000 school year the total cost in the US for special education programs for children who were deaf or hard of hearing was ?
the lifetime educational cost of hearing loss (more than 40 dB permanent loss without other disabilities) has been estiated at ?
it is expected that the lifetime costs for all people with hearing loss who were born in 2000 will total ?
653 mill. or 11,006 per child
115,600 per child
2.1 bill
Identification of hearing loss in US:
in 2016: -61% of babies identified had ? -39% identified had ? -63% identified had ? 37% identified had ?
hearing loss bilaterally
unilateral hearing loss
slight, mild, moderate, and moderately severe hearing loss
severe to profound hearing loss
approx. 95% of children born with hearing loss are born to ?
parents have a need to ?
looks different for each family based on ?
stages of grief:
affect parental ability to ?
may delay ?
any hearing loss is? to an inexperienced parent - may seek ?
what is our role as professionals working with these families?
hearing parents
share story and connect
circumstances
act on recommendations for child
treatment while parent seeks other input
deafness/ own info and get too much too soon
supporting them through diagnosis
Supporting families of children who are DHH:
informational counseling involves discussing with individuals and families the ?
personal adjustment counseling:
-addresses ?
family/caregiver focused:
attempts to achieve a balance between
nature of a disorder or situation, intervention considerations and techniques, prognosis, and material and community resources
feelings, emotions, thoughts, and beliefs expressed by individuals and their families/caregivers
a systems and technology driven approach
Desired Outcomes: The impact of decisions
a critical outcome: What are the ?
- what are your?
- how do you want to ?
- what ?
- where do you want your child to be ? what does it ?
approx. ?
families desired outcomes
- long-term goals for your child
- communicate with your child
- language do you know
- at age 3, 5, 16, 20 ? /take to get there
95% of children with hearing loss born to hearing and speaking families - other families in similar situations
Early Decisions and Parent Choices: as professionals we need to keep in mind: -parent - -communication -levels of f
rights
- amplification options and choices
- options
- family involvement
