Lecture 8 - Death and Dying Flashcards

1
Q

What is the culture about dying in the US?

A

It’s not something to be talked about, it’s to be avoided rather than a natural part of life.

It’s seen as a failure of our medical care and reflects negatively on the physician.

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2
Q

What did Dr. Kubler-Ross feel about death?

A

That modern technology was to blame for the increase fear of death and dying.

It’s opposite to our cultures defining values like youth, progress, and achievement.

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3
Q

What is thanatology?

A

The study of death and dying.

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4
Q

What is the belief about dying that many physicians hold?

A

That death is to be fought and avoided at all costs.

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5
Q

What are the stages of death/illness? What is the order?

A

Denial, anger, bargaining, depression, and acceptance.

No sequence of stages has been established.

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6
Q

What stage is a person in late in life? Describe each component.

A

Integrity vs. Despair

Despair: loss of hope, sense that life is meaningless, fear of death.

Integrity: satisfaction of productive life, enjoys fruits of one’s labors, acceptance of life cycle, acceptance of death.

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7
Q

What are characteristics of the end of life in the US?

A

Treatment often more intense than pts and family want.

Pts not dying where they want to die.

Care is fragmented.

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8
Q

Where do people WANT to die? Where do they actually die (these are in parenthesis)?

A

Home : 60-70% (34%)
Hospital: 20-40% (25%)
Nursing home: 0% (28%)

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9
Q

46% of families of patients who died in the hospital reported dissatisfaction with what?

A

Symptom control, level of participation in the decision making process, and communication with clinicians.

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10
Q

Why is death considered a failure on the part of the provider?

A

Due to the fear of missing a “treatable” problem.

Poor training in end-of-life care communication and decision making.

Fear of ethical or religious impropriety.

Fear of litigation.

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11
Q

What are difficulties that the patient and family face with approaching death?

A

Difficulty accepting death.

Over-expectations regarding the effectiveness of medical care.

Failure to participate in advance care planning discussions.

Fear of dying at home and fear of giving up.

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12
Q

What are system based forces that come into play in terms of death?

A

Increased # hospital bends = increased hospital deaths.

Lack of structure to support excellent end of life care in all settings.

Advances in life prolonging treatment for many illnesses.

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13
Q

What is palliative medicine and what does it emphasize?

A

Care for patients with serious illnesses.

Emphasized quality of life involving the physical, psychological, spiritual, and social aspects of the pts well-bring.

Works with pts other providers.

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14
Q

What is hospice?

A

A care plan that focuses on comfort as the primary goal vs care.

Support for pts and families nearing end of life.

Is an insurance benefit.

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15
Q

What is the criteria for hospice admission?

A

Recommendation of physician, life expectancy of 6mo or less if illness runs its normal course, no longer seeking cure, and a desire to stay out of the hospital.

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16
Q

What are the goals of hospice?

A

Treat the pt, not the disease.

Affirms life and regards dying as a normal process.

Emphasizes quality of life rather than length of life.

Addresses the pt and family’s medical, social, emotional, and spiritual needs.

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17
Q

Who are the core hospice team members?

A

Nurse, social worker, chaplain, volunteer coordinator, bereavement coordinator, pts personal physician, hospice medical director.

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18
Q

Where can hospice be provided?

A

Home, nursing facility, assisted living, hospital, residential hospice facility, prison, or wherever the pt is.

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19
Q

Do people who use hospice die sooner?

A

No, thats a common misconception.

Hospice neither hastens nor postpones death.

20
Q

What are some common misperceptions about requirements of hospice care?

A

Blood products, artificial hydration, TPN, non-oral feeding, or palliative chemotherapy or radiation.

Must be primary caregiver in home for home hospice.

Pt needs to be DNR

These are not all necessary to be on hospice. DNR is forbidden by medicare.

21
Q

Is hospice the right care plan for everyone who is dying?

A

No, their prognosis may be >6 mo or they may way mostly home-based quality of life care but want to keep the door open for hospitalization for acute issues.

22
Q

Is end-or-life care the same as palliative care?

A

End of life care is only a small component of palliative care

23
Q

What are the principles of palliative medicine?

A

Symptom management, improving function, honest communication about prognosis, planning for future, emotional support, caregiver support.

24
Q

What is one important way physicians can help their patients get the end of life care that they want?

A

By being honest and giving them the best estimate of their prognosis.

25
Q

What benefits result from patients having the difficult conversation about prognosis with their physician?

A
  • Lower use of aggressive treatments
  • Better quality of life
  • Longer hospice stays
  • Family after-death interviews showed better coping
26
Q

_____% of surrogates felt that avoiding discussions about prognosis is an unacceptable way to maintain hope Why is this?

A

93%

Information is essential to allow family members to prepare emotionally and logically for the possibility of a patient’s death

27
Q

Other than prognosis, what are other basic discussions that physicians should have with their patients about end-of-life care?

A

Goals of treatment, suffering, code status, and advance care planning

They should also know how to deliver bad news.

28
Q

What is advance care planning? What are the created documents called?

A

A process of thinking and talking about future health care decisions in the context of a patient’s values and goals.

Advance Directives.

29
Q

What does an advance directive include? When is it used?

A

Living will, provider orders for life-sustaining treatment (POLST), state DNR, and health care power of attorney (HCPOA).

Only used if pt is seriously ill or injured AND is unable to speak for themself.

State specific.

30
Q

What are some basic steps to delivering bad news?

A
  1. Provide a brief overview of clinical course up to this point
  2. Speak slowly
  3. Acknowledge emotions expressed
    4 Stay until all questions are answered
31
Q

What is considered life-sustaining treatment?

A

Treatment that serves to prolong life without reversing the underlying condition.

Mechanical ventilation, renal dialysis, chemo, antibiotics, artificial nutrition/hydration.

32
Q

What is physician-assisted death?

A

Physician providing, at the pts request, a lethal medication that the pt can take by his own hand to end otherwise intolerable suffering.

33
Q

What is Euthanasia?

A

Administration of a lethal agent by another person to a patient for the purpose of relieving the pts intolerable and incurable suffering.

34
Q

What is the principle of double effect?

A

Providing medically needed analgesia to a terminally ill pt even if it coincidentally shortens the pts life, as long as the intent is to treat the symptom and not shorten life.

35
Q

If people are spending at least 50% of their time in a chair or bed, what is their prognosis?

A

3 months or less.

36
Q

What are the changes in physiology that occurs in the days and weeks before death?

A

Very tired, increased sleep.

May refuse food and drink (ppl to not die from not eating, they stop eating bc they are dying)

Change in vitals

Change in cognition/memory/orientation

37
Q

What are changes in social interactions that occur before death?

A

Withdraw from social interactions, interact with core group of loved ones, no longer care about previous interests, complete old business, express gratitude and loss, and ask and grant forgiveness

38
Q

What are some psychological changes that occur before death?

A

Make peace with higher power, need permission to leave family, need to know family will take care of each other, increase confusion/restless, may see visions of loved ones who have died.

39
Q

What occurs in the end hours of life?

A

Unresponsive, bluish discoloration and cold hands and feet, decreased BP, decreased (or increased) breathing, pharyngeal secretions

40
Q

What is the first stage of bereavement (phase 1)? What are some signs and symptoms?

A

Denial/shock:

  • numbness
  • crying
  • sighing
  • abdominal emptiness
  • sense of unreality
  • denial
  • disbelief
41
Q

What is the second phase of bereavement? What are signs and symptoms?

A

Preoccupation with the deceased:

  • anger,sadness
  • insomnia
  • anorexia
  • weakness/fatigue
  • guilt
  • dreams
  • thoughts of the dead
  • anhedonia (inability to feel pleasure)
  • introversion
42
Q

What is the third phase of bereavement? What are signs and symptoms?

A

Can think about the past with pleasure, regaining interest in activities, forming new relationships.

43
Q

What is the attachment theory?

A

It’s our ability to make attachments that makes the loss of loved ones so painful

Grief is the price we pay for love

44
Q

What is a pathological grief-related condition?

A

Major depressive disorder: persistent and pervasive and extends beyond the context of the loss..

45
Q

What are some risk factors for poor bereavement outcomes?

A

Advanced age, lower SES, ambivalence/dependency with deceased, health problems, sudden death, death of a child, stigmatized or traumatic death, lack of social support, concurrent crisis.

46
Q

What are the major things that differentiate palliative care from hospice care?

A

Patients getting palliative care can still be receiving prolonging therapy and their prognosis can be longer than 6 months.

47
Q

What are the leading causes of death in the us?

A
  1. Heart disease
  2. Cancer
  3. Chronic lower Respiratory disease
  4. Unintentional injury