Lecture 7- End of Life Care Flashcards

1
Q

Who provides palliative care?

A
  • A team of doctors, nurses, and other specialists who work together to provide an extra layer of support. It is appropriate at ANY age and at ANY state in a serious illness and can be provided along with curative treatment
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2
Q

Palliative care definition

A
  • specialized medical care for patients with serious illnesses
  • ## provides patients with relief from the symptoms, pain, and stress of a serious illness- whatever the diagnosis.
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3
Q

The goal of palliative care

A

To improve the quality of life for both the patient and the family

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4
Q

Growth of palliative care growth in the last 15 years

A
  • Rapidly rising trend!
  • Sees the person beyond the disease
  • Represents a major paradigm shift in health care delivery
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5
Q

What do palliative care teams treat?

A

People living with serious, complex, and chronic illnesses-

  • ex. cancer, CHF, COPD, Renal failure, Dementia, Parkinson’s, ALS etc…
  • At ANY stage of their illness
  • Palliative care considered a KEY COMPONENT of medical care along with all other appropriate treatments
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6
Q

Palliative care teams provide what to improve quality and support to the primary physician, patient, and family?

A
  • Time to devote to intensive family meetings and patient/family communication
  • Communication and support for resolving family/patient/physician questions concerning goals of care
  • Expertise managing complex physical and emotional symptmos (pain, dyspnea, depression, nausea)
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7
Q

PC teams help improve….

A
  • Patient and family satisfaction with overall medical treatment, physicians and the health care team
  • HCAHPS- standards by contributing to reduced readmissions and hospital mortality
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8
Q

Palliative care takes care of the ___ ______ while the specialists take care of the ______ ________

A
  • “whole person”

- “ Patient’s Disease”

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9
Q

Rationale for Palliative care

A
  • reach adequate control of pain and other symptoms
  • Achieve a sense of control
  • Relieve burden on family members and strengthen relationship
  • gain realistic understanding of the nature of the illness
  • Understanding pros and cons of available treatment alternatives
  • Name decision makers in case of loss of decisional capacity
  • Have financial affairs in order
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10
Q

When does palliative care occur?

A
  • NOT just when they are about to die

- Should potentially begin immediately upon diagnosis- will likely increase as the disease progresses

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11
Q

3 trajectories of serious illness

A
  • Steady decline- short terminal phase (ex. pancreatic, lung cancer)
  • Slow decline, periodic crises, then sudden death (ex. CHF, COPD)
  • Prolonged dwindling (ex. General frailty, Dementia)
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12
Q

Palliative care services

A
  • Establish goals of care (ESSENTIAL)
  • Treatment of symptoms- pain and non-pain
  • Psychosocial support/spiritual care
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13
Q

Treatment Options for serious illness/end of life

A
  1. Life prolonging care- maximize length of survival, even if some compromise of other values- quantity of life is more important than quality of life
  2. Limited medical care- Use of selected medical interventions, often while determining the balance between benefit and burden
  3. Comfort care- Maximize pain and symptom relief, even if life is somewhat foreshortened- quality of life is greater than quantity of life
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14
Q

How do hospital-based palliative care programs work?

A
  • consultation services
  • Inpatient palliative care unit for inpatients
  • Co-management in the ED and ICU
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15
Q

Physician concerns about incorporating palliative care

A
  • Concern that introducing it could interfere with therapy directed at extending life as long as possible
  • Inadequate patient resources
  • Issues related to reimbursement
  • Shortage of palliative care physicians and services.
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16
Q

Barriers to referrals for palliative care

A
  • 2 main barriers
    1. Lack of awareness of the palliative care services among patients and their families
    2. Tendency of clinicians to equate palliative care with end of life care- do not offer/discourage consultation with Palliative care
17
Q

Why the health care provider is the gate keeper to Palliative care

A
  • Patients/families will not frequently ask for it
  • If the HCP recommends it, they will readily accept it
  • If the patient/family requests palliative care, they may be discouraged from receiving it
18
Q

Compare and Contrast Palliative medicine and Hospice care

A

Palliative care

  • All stages of disease trajectory
  • can be provided along with acute care
  • payment sources- various
  • locus of care- anywhere
  • Providers are physicians/nurses primarily
  • Treatment focus- comfort

Hospice Care

  • Typically defined by the medicare hospice benefit- primarily the last 6 months of life
  • Usually patient foregoes concurrent acute care
  • Payment source- Medicare/medicaid
  • Locus of care- in site patient identifies as “home”
  • Providers- More inclusive services than palliative medicine
  • Treatment focus- comfort